Literature DB >> 31758417

Parent and Professional Experiences Supporting African-American Children with Autism.

Jamie N Pearson1, Hedda Meadan2, Kayla M Malone3, Braelan M Martin4.   

Abstract

While the identification of autism spectrum disorder (ASD) has stabilized at 1 in 59 children in the USA, and children can now be diagnosed reliably with ASD at 2 years old, African-American children are less likely to be diagnosed with ASD. Once African-American children with ASD are identified, there is a latency between diagnosis and access to services when compared to European American children. In an effort to investigate these disparities, this qualitative study explored the experiences and perceptions of African-American parents of children with ASD. This study also explored the experiences and perceptions of professionals who support African-American children with ASD and their families. Findings indicate that (a) participants identified few facilitators to service access, and (b) both parents and healthcare providers perceived similar barriers and facilitators to early diagnoses and service access. Implications for parents, healthcare providers, and educators are discussed.

Entities:  

Keywords:  Access to services; African-American children; Autism spectrum disorder; Disparities; Healthcare

Mesh:

Year:  2019        PMID: 31758417     DOI: 10.1007/s40615-019-00659-9

Source DB:  PubMed          Journal:  J Racial Ethn Health Disparities        ISSN: 2196-8837


  11 in total

1.  Influence of race and socioeconomic status on engagement in pediatric primary care.

Authors:  Elizabeth D Cox; Kirstin A Nackers; Henry N Young; Megan A Moreno; Joseph F Levy; Rita M Mangione-Smith
Journal:  Patient Educ Couns       Date:  2011-11-08

2.  "Sometimes I feel overwhelmed": educational needs of family physicians caring for people with intellectual disability.

Authors:  Joanne Wilkinson; Deborah Dreyfus; Mary Cerreto; Barbara Bokhour
Journal:  Intellect Dev Disabil       Date:  2012-06

Review 3.  Autism and the African American community.

Authors:  Ruby M Gourdine; Tiffany D Baffour; Martell Teasley
Journal:  Soc Work Public Health       Date:  2011

4.  Pediatrician identification of Latino children at risk for autism spectrum disorder.

Authors:  Katharine E Zuckerman; Kimber Mattox; Karen Donelan; Oyundari Batbayar; Anita Baghaee; Christina Bethell
Journal:  Pediatrics       Date:  2013-08-19       Impact factor: 7.124

5.  Patient race/ethnicity and quality of patient-physician communication during medical visits.

Authors:  Rachel L Johnson; Debra Roter; Neil R Powe; Lisa A Cooper
Journal:  Am J Public Health       Date:  2004-12       Impact factor: 9.308

Review 6.  Understanding racial-ethnic disparities in health: sociological contributions.

Authors:  David R Williams; Michelle Sternthal
Journal:  J Health Soc Behav       Date:  2010

7.  Brief report: Under-representation of African americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures.

Authors:  Claudia L Hilton; Robert T Fitzgerald; Kelley M Jackson; Rolanda A Maxim; Christopher C Bosworth; Paul T Shattuck; Daniel H Geschwind; John N Constantino
Journal:  J Autism Dev Disord       Date:  2010-05

8.  Race differences in the age at diagnosis among medicaid-eligible children with autism.

Authors:  David S Mandell; John Listerud; Susan E Levy; Jennifer A Pinto-Martin
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2002-12       Impact factor: 8.829

Review 9.  Impact of child disability on the family.

Authors:  Nancy E Reichman; Hope Corman; Kelly Noonan
Journal:  Matern Child Health J       Date:  2007-12-01

10.  Race influences parent report of concerns about symptoms of autism spectrum disorder.

Authors:  Meghan Rose Donohue; Amber W Childs; Megan Richards; Diana L Robins
Journal:  Autism       Date:  2017-11-03
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  2 in total

1.  Meeting FACES: Preliminary Findings from a Community Workshop for Minority Parents of Children with Autism in Central North Carolina.

Authors:  Jamie N Pearson; Amanda L Traficante; Lauren M Denny; Kayla Malone; Evadine Codd
Journal:  J Autism Dev Disord       Date:  2020-01

2.  Underserved and Undermeasured: a Mixed-Method Analysis of Family-Centered Care and Care Coordination for Low-Income Minority Families of Children with Autism Spectrum Disorder.

Authors:  Stephanie Wagner; I Leslie Rubin; Jennifer S Singh
Journal:  J Racial Ethn Health Disparities       Date:  2021-07-06
  2 in total

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