Literature DB >> 31748827

Patients' Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer.

Martin Checklin1, Jessica Bain2, Lucy Bath2, Kate Lethbridge2.   

Abstract

Patients' perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients' perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients' perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients' perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca.

Entities:  

Keywords:  Deglutition and deglutition disorders; Dysphagia; Head and neck cancer; Oncology; Patients’ perspectives; Rehabilitation

Mesh:

Year:  2019        PMID: 31748827     DOI: 10.1007/s00455-019-10077-y

Source DB:  PubMed          Journal:  Dysphagia        ISSN: 0179-051X            Impact factor:   3.438


  4 in total

1.  European white paper: oropharyngeal dysphagia in head and neck cancer.

Authors:  Laura W J Baijens; Margaret Walshe; Leena-Maija Aaltonen; Christoph Arens; Reinie Cordier; Patrick Cras; Lise Crevier-Buchman; Chris Curtis; Wojciech Golusinski; Roganie Govender; Jesper Grau Eriksen; Kevin Hansen; Kate Heathcote; Markus M Hess; Sefik Hosal; Jens Peter Klussmann; C René Leemans; Denise MacCarthy; Beatrice Manduchi; Jean-Paul Marie; Reza Nouraei; Claire Parkes; Christina Pflug; Walmari Pilz; Julie Regan; Nathalie Rommel; Antonio Schindler; Annemie M W J Schols; Renee Speyer; Giovanni Succo; Irene Wessel; Anna C H Willemsen; Taner Yilmaz; Pere Clavé
Journal:  Eur Arch Otorhinolaryngol       Date:  2020-12-19       Impact factor: 2.503

Review 2.  A qualitative systematic review of the social eating and drinking experiences of patients following treatment for head and neck cancer.

Authors:  Mark Dornan; Cherith Semple; Anne Moorhead; Eilís McCaughan
Journal:  Support Care Cancer       Date:  2021-03-01       Impact factor: 3.603

Review 3.  Screening Tools Designed to Assess and Evaluate Oropharyngeal Dysphagia in Adult Patients: A Scoping Review.

Authors:  Rafael A Bernardes; Arménio Cruz; Hugo Neves; Vítor Parola; Nuno Catela
Journal:  Nurs Rep       Date:  2022-04-02

4.  Not Just Dyspnoea: Swallowing as a Concern for Adults with Laryngotracheal Stenosis Undergoing Airway Reconstruction.

Authors:  Gemma M Clunie; Athina Belsi; Justin W G Roe; Caroline M Alexander; Gurpreet Sandhu; Alison McGregor
Journal:  Dysphagia       Date:  2021-04-08       Impact factor: 3.438

  4 in total

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