Literature DB >> 31744036

Spina bifida transition to adult healthcare guidelines.

Ellen J Fremion1,2, Nienke P Dosa3.   

Abstract

With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-specific transition to adult healthcare guidelines are warranted to address the diverse and complex medical, adaptive, and social needs particular to this condition. This commentary discusses the SB Transition Healthcare Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, reviews current transition care models in which such guidelines can be implemented, and explores further research topics in SB transition care.

Entities:  

Keywords:  Spina bifida; adolescent medicine; developmental disability; transition to adult healthcare

Year:  2019        PMID: 31744036     DOI: 10.3233/PRM-190633

Source DB:  PubMed          Journal:  J Pediatr Rehabil Med        ISSN: 1874-5393


  3 in total

1.  The Transition from Pediatric to Adult Health Care in Young Adults with Spina Bifida: Demographic and Physician-Related Correlates.

Authors:  Colleen Stiles-Shields; Tessa K Kritikos; Meredith Starnes; Zoe R Smith; Grayson N Holmbeck
Journal:  J Dev Behav Pediatr       Date:  2021-09-24       Impact factor: 2.988

2.  An Online-Based Transition Care Program for Adolescents with Spina Bifida Using Intervention Mapping: A Protocol for Program Development.

Authors:  Eun Kyoung Choi; Hyeseon Yun; Eunjeong Bae
Journal:  Int J Environ Res Public Health       Date:  2022-01-18       Impact factor: 3.390

3.  Factor Structure of Medical Autonomy Scales in Young People with Spina Bifida.

Authors:  Zoe R Smith; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2021-07-20
  3 in total

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