Literature DB >> 31720877

Survivorship and Caregiver Issues in Neuro-oncology.

Heather E Leeper1.   

Abstract

OPINION STATEMENT: As cancer care has evolved so has the awareness of the issues cancer patients, their caregivers and families face during and after treatment, giving rise to the cancer survivorship care initiative. The body of research pertaining to quality of life, health-related quality of life, and multidimensional symptom burden of neuro-oncology patients and their caregivers has grown significantly, yielding a wealth of data and information indicating interventions and actions targeting symptoms and needs are both warranted and desired. The provision of survivorship care aiming to deliver care in a patient-centered, whole-person model offers a means by which these interventions and actions can be actualized. The research specific to survivorship care models and survivorship care plans and their delivery remains a large opportunity, one worth the careful consideration and participation of neuro-oncology healthcare providers for the benefit of their highly deserving patients and their caregivers and families.

Entities:  

Keywords:  Caregiver; Neuro-oncology; Primary brain tumor; Supportive care; Survivor; Survivorship

Year:  2019        PMID: 31720877     DOI: 10.1007/s11864-019-0681-y

Source DB:  PubMed          Journal:  Curr Treat Options Oncol        ISSN: 1534-6277


  39 in total

1.  Can't see the forest for the care plan: a call to revisit the context of care planning.

Authors:  Carla Parry; Erin E Kent; Laura P Forsythe; Catherine M Alfano; Julia H Rowland
Journal:  J Clin Oncol       Date:  2013-06-24       Impact factor: 44.544

2.  Use of survivorship care plans in the United States: associations with survivorship care.

Authors:  Laura P Forsythe; Carla Parry; Catherine M Alfano; Erin E Kent; Corinne R Leach; David A Haggstrom; Patricia A Ganz; Noreen Aziz; Julia H Rowland
Journal:  J Natl Cancer Inst       Date:  2013-10-04       Impact factor: 13.506

3.  High psychosocial burden in relatives of malignant brain tumor patients.

Authors:  Sonja Stieb; Sabine Fischbeck; Wolfgang Wagner; Julia Appels; Dorothee Wiewrodt
Journal:  Clin Neurol Neurosurg       Date:  2018-04-24       Impact factor: 1.876

4.  Controversies in defining cancer survivorship.

Authors:  Linda Dirven; Lonneke V van de Poll-Franse; Neil K Aaronson; Jaap C Reijneveld
Journal:  Lancet Oncol       Date:  2015-05-27       Impact factor: 41.316

5.  Concordance of patient and caregiver reports in evaluating quality of life in patients with malignant gliomas and an assessment of caregiver burden.

Authors:  Daniel I Jacobs; Priya Kumthekar; Becky V Stell; Sean A Grimm; Alfred W Rademaker; Laurie Rice; James P Chandler; Kenji Muro; MaryAnne Marymont; Irene B Helenowski; Lynne I Wagner; Jeffrey J Raizer
Journal:  Neurooncol Pract       Date:  2014-05-05

Review 6.  Impaired health-related quality of life in meningioma patients-a systematic review.

Authors:  Amir H Zamanipoor Najafabadi; Marthe C M Peeters; Linda Dirven; Daniel J Lobatto; Justus L Groen; Marieke L D Broekman; Saskia M Peerdeman; Wilo C Peul; Martin J B Taphoorn; Wouter R van Furth
Journal:  Neuro Oncol       Date:  2017-07-01       Impact factor: 12.300

7.  Screening for symptom burden and supportive needs of patients with glioblastoma and brain metastases and their caregivers in relation to their use of specialized palliative care.

Authors:  Bettina Seekatz; Matthias Lukasczik; Mario Löhr; Katja Ehrmann; Michael Schuler; Almuth F Keßler; Silke Neuderth; Ralf-Ingo Ernestus; Birgitt van Oorschot
Journal:  Support Care Cancer       Date:  2017-03-29       Impact factor: 3.603

8.  Life after surgical resection of a meningioma: a prospective cross-sectional study evaluating health-related quality of life.

Authors:  Farshad Nassiri; Benjamin Price; Ameer Shehab; Karolyn Au; Michael D Cusimano; Michael D Jenkinson; Christine Jungk; Alireza Mansouri; Thomas Santarius; Suganth Suppiah; Ken X Teng; Gurvinder S Toor; Gelareh Zadeh; Tobias Walbert; Katharine J Drummond
Journal:  Neuro Oncol       Date:  2019-01-14       Impact factor: 12.300

Review 9.  Palliative and supportive care needs of patients with high-grade glioma and their carers: a systematic review of qualitative literature.

Authors:  Gaye Moore; Anna Collins; Caroline Brand; Michelle Gold; Carrie Lethborg; Michael Murphy; Vijaya Sundararajan; Jennifer Philip
Journal:  Patient Educ Couns       Date:  2012-12-05

10.  Systematic Review of the Impact of Cancer Survivorship Care Plans on Health Outcomes and Health Care Delivery.

Authors:  Paul B Jacobsen; Antonio P DeRosa; Tara O Henderson; Deborah K Mayer; Chaya S Moskowitz; Electra D Paskett; Julia H Rowland
Journal:  J Clin Oncol       Date:  2018-05-18       Impact factor: 44.544

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  1 in total

1.  Daily functioning in glioma survivors: associations with cognitive function, psychological factors and quality of life.

Authors:  Kathleen Van Dyk; Lucy Wall; Brandon F Heimberg; Justin Choi; Catalina Raymond; Chencai Wang; Albert Lai; Timothy F Cloughesy; Benjamin M Ellingson; Phioanh Nghiemphu
Journal:  CNS Oncol       Date:  2022-05-18
  1 in total

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