Objective: To examine parent's perceptions of deep brain stimulation (DBS) and whether DBS is perceived to be a viable and safe treatment for their adolescent child presenting with a severe, treatment-resistant neurological or psychiatric condition. Method: Two hundred and seventy-nine parents completed an online survey using Amazon Mechanical Turk (MTurk). Participants were presented with five vignette scenarios involving adolescents with severe, treatment-resistant neurological or psychiatric conditions: Rett syndrome, autism spectrum disorder, epilepsy, obsessive-compulsive disorder, and Tourette syndrome. Parents were then asked to evaluate each scenario and rate overall acceptability of using DBS to improve their child's core symptoms. Data were collected over a period of 2 weeks in the month of October 2018. Results: We found that parents reported favorable impressions of DBS regardless of the target condition, especially when greater improvement could be assured and when their child had the capacity to assist in the treatment decision-making. Parents indicated some reluctance to use DBS when possible safety concerns were present. Familiarity with DBS was directly associated with attitudes. Conclusions: The findings highlight an overall parental willingness to consider DBS as a treatment option for key symptoms of neurological and psychiatric conditions in adolescents.
Objective: To examine parent's perceptions of deep brain stimulation (DBS) and whether DBS is perceived to be a viable and safe treatment for their adolescent child presenting with a severe, treatment-resistant neurological or psychiatric condition. Method: Two hundred and seventy-nine parents completed an online survey using Amazon Mechanical Turk (MTurk). Participants were presented with five vignette scenarios involving adolescents with severe, treatment-resistant neurological or psychiatric conditions: Rett syndrome, autism spectrum disorder, epilepsy, obsessive-compulsive disorder, and Tourette syndrome. Parents were then asked to evaluate each scenario and rate overall acceptability of using DBS to improve their child's core symptoms. Data were collected over a period of 2 weeks in the month of October 2018. Results: We found that parents reported favorable impressions of DBS regardless of the target condition, especially when greater improvement could be assured and when their child had the capacity to assist in the treatment decision-making. Parents indicated some reluctance to use DBS when possible safety concerns were present. Familiarity with DBS was directly associated with attitudes. Conclusions: The findings highlight an overall parental willingness to consider DBS as a treatment option for key symptoms of neurological and psychiatric conditions in adolescents.
Authors: Sapana R Patel; Hanga Galfavy; Marcia B Kimeldorf; Lisa B Dixon; Helen Blair Simpson Journal: Psychiatr Serv Date: 2016-10-17 Impact factor: 3.084
Authors: Abilash Haridas; Michele Tagliati; Irene Osborn; Ioannis Isaias; Yakov Gologorsky; Susan B Bressman; Donald Weisz; Ron L Alterman Journal: Neurosurgery Date: 2011-03 Impact factor: 4.654
Authors: Lior M Elkaim; Naif M Alotaibi; Alissa Sigal; Haifa M Alotaibi; Nir Lipsman; Suneil K Kalia; Darcy L Fehlings; Andres M Lozano; George M Ibrahim Journal: Dev Med Child Neurol Date: 2018-10-15 Impact factor: 5.449
Authors: Han Yan; Eric Toyota; Melanie Anderson; Taylor J Abel; Elizabeth Donner; Suneil K Kalia; James Drake; James T Rutka; George M Ibrahim Journal: J Neurosurg Pediatr Date: 2018-11-30 Impact factor: 2.375
Authors: Saira A Weinzimmer; Sophie C Schneider; Sandra L Cepeda; Andrew G Guzick; Gabriel Lázaro-Muñoz; Elizabeth McIngvale; Wayne K Goodman; Sameer A Sheth; Eric A Storch Journal: J Child Adolesc Psychopharmacol Date: 2021-02-02 Impact factor: 2.576