Literature DB >> 31691629

Automating Dynamic Consent Decisions for the Processing of Social Media Data in Health Research.

Chris Norval1, Tristan Henderson2.   

Abstract

Social media have become a rich source of data, particularly in health research. Yet, the use of such data raises significant ethical questions about the need for the informed consent of those being studied. Consent mechanisms, if even obtained, are typically broad and inflexible, or place a significant burden on the participant. Machine learning algorithms show much promise for facilitating a "middle-ground" approach: using trained models to predict and automate granular consent decisions. Such techniques, however, raise a myriad of follow-on ethical and technical considerations. In this article, we present an exploratory user study (n = 67) in which we find that we can predict the appropriate flow of health-related social media data with reasonable accuracy, while minimizing undesired data leaks. We then attempt to deconstruct the findings of this study, identifying and discussing a number of real-world implications if such a technique were put into practice.

Entities:  

Keywords:  contextual integrity; health support networks; informed consent; privacy; social media

Year:  2019        PMID: 31691629     DOI: 10.1177/1556264619883715

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  2 in total

1.  Up-to-the-Minute Privacy Policies via Gossips in Participatory Epidemiological Studies.

Authors:  Aakash Sharma; Thomas Bye Nilsen; Katja Pauline Czerwinska; Daria Onitiu; Lars Brenna; Dag Johansen; Håvard D Johansen
Journal:  Front Big Data       Date:  2021-05-13

2.  Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents.

Authors:  G Samuel; F Hardcastle; R Broekstra; A Lucassen
Journal:  BMC Med Ethics       Date:  2022-09-21       Impact factor: 2.834

  2 in total

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