Literature DB >> 31691628

Disability "In-Justice": The Benefits and Challenges of "Yarning" With Young People Undergoing Diagnostic Assessment for Fetal Alcohol Spectrum Disorder in a Youth Detention Center.

Sharynne Hamilton1, Tracy Reibel1, Sarah Maslen2, Rochelle Watkins1, Freeman Jacinta1, Hayley Passmore1, Raewyn Mutch1, Melissa O'Donnell1, Valerie Braithwaite3, Carol Bower1.   

Abstract

Undertaking research with young people presents an array of methodological challenges. We report the findings from a qualitative study that took place alongside a fetal alcohol spectrum disorder (FASD) prevalence study among detainees in Australia. Of 38 participants, 27 were Aboriginal youth. Interviews were conducted using "social yarning" and "research topic yarning," an Indigenous research method which allows for data collection in an exploratory, culturally safe way. A complex interplay emerged between social yarning and research topic yarning which provided a space to explore responsively with participants their experiences of FASD assessments. Flexibility, including language adaptation and visual descriptions about assessments, was utilized to assist participants recall and retell their experiences. There were, however, challenges in gathering data on the assessment experiences of some participants. We describe how employing a "yarning" method for collecting data could benefit children and young people undergoing neurodevelopmental assessments in the future.

Entities:  

Keywords:  adolescents; caregivers; caretaking; children; cultural competence; culture; developmental disability; disability; disabled persons; ethics; health; health care; mental health and illness; moral perspectives; prisoners; prisons; qualitative Yarning, Australia, Western Australia; social services; users’ experiences; young adults; youth

Year:  2019        PMID: 31691628     DOI: 10.1177/1049732319882910

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  3 in total

1.  It takes a village: Influencing policy and practice to prevent alcohol use in pregnancy and promote better outcomes for individuals living with Fetal Alcohol Spectrum Disorder.

Authors:  Amy Finlay-Jones; Elizabeth Elliott; Astrid Chapman; Jane Halliday; Heather Jones; Natalie Kippin; Narelle Mullan; Hayley Passmore; Tracy Reibel; Neil Reynolds; Martyn Symons; Tracey W Tsang; Rochelle Watkins; Carol Bower
Journal:  Int J Popul Data Sci       Date:  2022-03-02

Review 2.  Decolonising qualitative research with respectful, reciprocal, and responsible research practice: a narrative review of the application of Yarning method in qualitative Aboriginal and Torres Strait Islander health research.

Authors:  Michelle Kennedy; Raglan Maddox; Kade Booth; Sian Maidment; Catherine Chamberlain; Dawn Bessarab
Journal:  Int J Equity Health       Date:  2022-09-13

Review 3.  Understanding the Relationship between Fetal Alcohol Spectrum Disorder (FASD) and Criminal Justice: A Systematic Review.

Authors:  Francesco Sessa; Monica Salerno; Massimiliano Esposito; Nunzio Di Nunno; Giuseppe Li Rosi; Salvatore Roccuzzo; Cristoforo Pomara
Journal:  Healthcare (Basel)       Date:  2022-01-02
  3 in total

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