| Literature DB >> 31691625 |
Zaynab Essack1,2, Nkosinathi Ngcobo1, Natasha Van der Pol1, Lucia Knight3, Tamsen Rochat1,4, Mirriam Mkhize1, Heidi Van Rooyen1,4.
Abstract
Conducting formative research is a scientific, ethical, and community engagement imperative. This article describes how formative research refined ethical processes for a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal. In-depth interviews were conducted to explore community (n = 20) and key stakeholders' (n = 20) needs, concerns, and perspectives on the FBCT model, including ethical issues for working with children and families. Data were analyzed thematically using NVivo software. Four key ethical considerations emerged, namely, respect for community norms and cultural practices; confidentiality, privacy, and forced disclosure; identifying potential risks and benefits; and voluntariness and capacity to consent. Data were used to refine the intervention and address participants' concerns by engaging the community, providing ethics training for intervention staff, and incorporating independent consent mechanisms for adolescent HIV testing that supported opportunities for family-based testing and disclosure.Entities:
Keywords: HIV counseling and testing; disclosure; family-based counseling and testing; informed consent; risks and benefits
Year: 2019 PMID： 31691625 PMCID： PMC7200267 DOI： 10.1177/1556264619885214
Source DB: PubMed Journal: J Empir Res Hum Res Ethics ISSN： 1556-2646 Impact factor: 1.742