Literature DB >> 31647757

Should Lack of Social Support Prevent Access to Organ Transplantation?

Kelsey N Berry1, Norman Daniels2, Keren Ladin3.   

Abstract

Transplantation programs commonly rely on clinicians' judgments about patients' social support (care from friends or family) when deciding whether to list them for organ transplantation. We examine whether using social support to make listing decisions for adults seeking transplantation is morally legitimate, drawing on recent data about the evidence-base, implementation, and potential impacts of the criterion on underserved and diverse populations. We demonstrate that the rationale for the social support criterion, based in the principle of utility, is undermined by its reliance on tenuous evidence. Moreover, social support requirements may reinforce transplant inequities, interfere in patients' personal relationships, and contribute to biased and inconsistent listing procedures. As such, accommodating the needs of patients with limited social support would better balance ethical commitments to equity, utility, and respect for persons in transplantation. We suggest steps for researchers, transplantation programs, and policymakers to improve fair use of social support in transplantation.

Entities:  

Keywords:  ethics; health care rationing; health policy; inequities; justice; organ transplantation; social support

Year:  2019        PMID: 31647757     DOI: 10.1080/15265161.2019.1665728

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  9 in total

1.  A Little Digital Help: Advancing Social Support for Transplant Patients With Technology.

Authors:  Margot Kelly-Hedrick; Macey L Henderson
Journal:  Am J Bioeth       Date:  2019-11       Impact factor: 11.229

2.  A Critical Role for Shared Decision-Making about Referral and Evaluation for Kidney Transplant.

Authors:  Catherine R Butler
Journal:  Kidney360       Date:  2022-01-27

3.  Scarce Health Care Resources and Equity during COVID-19: Lessons from the History of Kidney Failure Treatment.

Authors:  Catherine R Butler; Aaron G Wightman
Journal:  Kidney360       Date:  2021-10-23

4.  Defining the ethical considerations surrounding kidney transplantation for frail and cognitively impaired patients: a Delphi study of geriatric transplant experts.

Authors:  Prakriti Shrestha; Sarah E Van Pilsum Rasmussen; Elizabeth A King; Elisa J Gordon; Ruth R Faden; Dorry L Segev; Casey Jo Humbyrd; Mara McAdams-DeMarco
Journal:  BMC Geriatr       Date:  2022-07-08       Impact factor: 4.070

5.  Survival and Lung Transplant Outcomes for Individuals With Advanced Cystic Fibrosis Lung Disease Living in the United States and Canada: An Analysis of National Registries.

Authors:  Kathleen J Ramos; Jenna Sykes; Sanja Stanojevic; Xiayi Ma; Joshua S Ostrenga; Aliza Fink; Bradley S Quon; Bruce C Marshall; Albert Faro; Kristofer Petren; Alexander Elbert; Christopher H Goss; Anne L Stephenson
Journal:  Chest       Date:  2021-04-17       Impact factor: 10.262

6.  Medication Adherence and Associated Factors in Patients With Type 2 Diabetes: A Structural Equation Model.

Authors:  Jing Huang; Shenglan Ding; Shuyuan Xiong; Zhiping Liu
Journal:  Front Public Health       Date:  2021-11-04

7.  The Impact of Socio-Demographic Factors on the Functioning of Liver Transplant Patients.

Authors:  Agnieszka Kisielska; Daria Schneider-Matyka; Kamila Rachubińska; Przemysław Ustanowski; Anita Rybicka; Elżbieta Grochans
Journal:  Int J Environ Res Public Health       Date:  2022-04-01       Impact factor: 3.390

8.  Caregiver COVID-19 vaccination for solid organ transplant candidates.

Authors:  Bob Z Sun; Aaron Wightman; Douglas S Diekema
Journal:  Am J Transplant       Date:  2022-05-07       Impact factor: 9.369

9.  Pediatric Deep Brain Stimulation for Dystonia: Current State and Ethical Considerations.

Authors:  Katrina A MuÑoz; Jennifer Blumenthal-Barby; Eric A Storch; Laura Torgerson; Gabriel LÁzaro-MuÑoz
Journal:  Camb Q Healthc Ethics       Date:  2020-10       Impact factor: 1.566

  9 in total

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