Literature DB >> 31647060

Reaping the benefits of Open Data in public health.

P Huston1, V L Edge1, E Bernier1.   

Abstract

Open Data is part of a broad global movement that is not only advancing science and scientific communication but also transforming modern society and how decisions are made. What began with a call for Open Science and the rise of online journals has extended to Open Data, based on the premise that if reports on data are open, then the generated or supporting data should be open as well. There have been a number of advances in Open Data over the last decade, spearheaded largely by governments. A real benefit of Open Data is not simply that single databases can be used more widely; it is that these data can also be leveraged, shared and combined with other data. Open Data facilitates scientific collaboration, enriches research and advances analytical capacity to inform decisions. In the human and environmental health realms, for example, the ability to access and combine diverse data can advance early signal detection, improve analysis and evaluation, inform program and policy development, increase capacity for public participation, enable transparency and improve accountability. However, challenges remain. Enormous resources are needed to make the technological shift to open and interoperable databases accessible with common protocols and terminology. Amongst data generators and users, this shift also involves a cultural change: from regarding databases as restricted intellectual property, to considering data as a common good. There is a need to address legal and ethical considerations in making this shift. Finally, along with efforts to modify infrastructure and address the cultural, legal and ethical issues, it is important to share the information equitably and effectively. While there is great potential of the open, timely, equitable and straightforward sharing of data, fully realizing the myriad of benefits of Open Data will depend on how effectively these challenges are addressed.

Entities:  

Keywords:  Open Data; Open Science; Open access; big data; public health science

Year:  2019        PMID: 31647060      PMCID: PMC6781855          DOI: 10.14745/ccdr.v45i10a01

Source DB:  PubMed          Journal:  Can Commun Dis Rep        ISSN: 1188-4169


  2 in total

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Journal:  Can Commun Dis Rep       Date:  2019-05-02

Review 2.  Crowdsourcing applications for public health.

Authors:  Daren C Brabham; Kurt M Ribisl; Thomas R Kirchner; Jay M Bernhardt
Journal:  Am J Prev Med       Date:  2014-02       Impact factor: 5.043

  2 in total
  8 in total

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2.  Open science practices for eating disorders research.

Authors:  Natasha L Burke; Guido K W Frank; Anja Hilbert; Thomas Hildebrandt; Kelly L Klump; Jennifer J Thomas; Tracey D Wade; B Timothy Walsh; Shirley B Wang; Ruth Striegel Weissman
Journal:  Int J Eat Disord       Date:  2021-09-23       Impact factor: 5.791

Review 3.  Health Heatmap of India: An Open Data Platform.

Authors:  Akshay S Dinesh; Varnita Mathur; B R Ansil; Vijay Chandru; Ravi Chellam; Abi Tamim Vanak; Uma Ramakrishnan; Prabhakar Rajagopal
Journal:  J Indian Inst Sci       Date:  2020-10-18

4.  Mapping European research networks providing health data: results from the InfAct Joint Action on health information.

Authors:  Brigid Unim; Elsi Haverinen; Eugenio Mattei; Flavia Carle; Andrea Faragalli; Rosaria Gesuita; Martin Thissen; Linda Abboud; Tiziana Grisetti; Petronille Bogaert; Luigi Palmieri
Journal:  Arch Public Health       Date:  2022-01-10

5.  Transparent human - (non-) transparent technology? The Janus-faced call for transparency in AI-based health care technologies.

Authors:  Tabea Ott; Peter Dabrock
Journal:  Front Genet       Date:  2022-08-22       Impact factor: 4.772

6.  Publicly Available Health Research Datasets: Opportunities and Responsibilities.

Authors:  Ahmed S BaHammam; Michael W L Chee
Journal:  Nat Sci Sleep       Date:  2022-09-27

7.  QIBA guidance: Computed tomography imaging for COVID-19 quantitative imaging applications.

Authors:  Ricardo S Avila; Sean B Fain; Chuck Hatt; Samuel G Armato; James L Mulshine; David Gierada; Mario Silva; David A Lynch; Eric A Hoffman; Frank N Ranallo; John R Mayo; David Yankelevitz; Raul San Jose Estepar; Raja Subramaniam; Claudia I Henschke; Alex Guimaraes; Daniel C Sullivan
Journal:  Clin Imaging       Date:  2021-02-25       Impact factor: 2.420

8.  Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.

Authors:  Ann M Mc Cartney; Jane Anderson; Libby Liggins; Maui L Hudson; Matthew Z Anderson; Ben TeAika; Janis Geary; Robert Cook-Deegan; Hardip R Patel; Adam M Phillippy
Journal:  Proc Natl Acad Sci U S A       Date:  2022-01-25       Impact factor: 11.205

  8 in total

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