Literature DB >> 31609205

Patient-reported outcomes in the spotlight.

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Year:  2019        PMID： 31609205     DOI： 10.1016/S1474-4422(19)30357-6

Source DB:  PubMed          Journal:  Lancet Neurol        ISSN： 1474-4422            Impact factor:   44.182


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  9 in total

1.  The Multiple Sclerosis Data Alliance Catalogue: Enabling Web-Based Discovery of Metadata from Real-World Multiple Sclerosis Data Sources.

Authors:  Lotte Geys; Tina Parciak; Ashkan Pirmani; Robert McBurney; Hollie Schmidt; Tanja Malbaša; Tjalf Ziemssen; Arnfin Bergmann; Juan I Rojas; Edgardo Cristiano; Juan Antonio García-Merino; Óscar Fernández; Jens Kuhle; Claudio Gobbi; Amber Delmas; Steve Simpson-Yap; Nupur Nag; Bassem Yamout; Nina Steinemann; Pierrette Seeldrayers; Bénédicte Dubois; Ingrid van der Mei; Alexander Stahmann; Jelena Drulovic; Tatjana Pekmezovic; Waldemar Brola; Mar Tintore; Nynke Kalkers; Rumen Ivanov; Magd Zakaria; Maged Abdel Naseer; Wim Van Hecke; Nikolaos Grigoriadis; Marina Boziki; Adriana Carra; Mikolaj A Pawlak; Ruth Dobson; Kerstin Hellwig; Arlene Gallagher; Letizia Leocani; Gloria Dalla Costa; Nise Alessandra de Carvalho Sousa; Bart Van Wijmeersch; Liesbet M Peeters
Journal:  Int J MS Care       Date:  2021-12-29

2.  The value of patient-reported outcome measures for multiple sclerosis.

Authors:  Marisa P McGinley; Brittany Lapin
Journal:  Mult Scler       Date:  2022-09       Impact factor: 5.855

3.  Application of Patient-Reported Outcome Measurements in Clinical Trials in China.

Authors:  Hui Zhou; Mi Yao; Xiaodan Gu; Mingrui Liu; Ruifeng Zeng; Qin Li; Tingjia Chen; Wen He; Xiao Chen; Gang Yuan
Journal:  JAMA Netw Open       Date:  2022-05-02

Review 4.  Standardization and digitization of clinical data in multiple sclerosis.

Authors:  Marcus D'Souza; Athina Papadopoulou; Christophe Girardey; Ludwig Kappos
Journal:  Nat Rev Neurol       Date:  2021-01-15       Impact factor: 42.937

5.  Measuring outcomes that matter most to people with multiple sclerosis: the role of patient-reported outcomes.

Authors:  Giampaolo Brichetto; Paola Zaratin
Journal:  Curr Opin Neurol       Date:  2020-06       Impact factor: 5.710

Review 6.  Charting a global research strategy for progressive MS-An international progressive MS Alliance proposal.

Authors:  Alan J Thompson; William Carroll; Olga Ciccarelli; Giancarlo Comi; Anne Cross; Alexis Donnelly; Anthony Feinstein; Robert J Fox; Anne Helme; Reinhard Hohlfeld; Robert Hyde; Pamela Kanellis; Douglas Landsman; Catherine Lubetzki; Ruth Ann Marrie; Julia Morahan; Xavier Montalban; Bruno Musch; Sarah Rawlings; Marco Salvetti; Finn Sellebjerg; Caroline Sincock; Kathryn E Smith; Jon Strum; Paola Zaratin; Timothy Coetzee
Journal:  Mult Scler       Date:  2021-12-01       Impact factor: 6.312

7.  The MULTI-ACT model: the path forward for participatory and anticipatory governance in health research and care.

Authors:  Paola Zaratin; Deborah Bertorello; Roberta Guglielmino; Danilo Devigili; Giampaolo Brichetto; Valentina Tageo; Gabriele Dati; Stephanie Kramer; Mario Alberto Battaglia; Monica Di Luca
Journal:  Health Res Policy Syst       Date:  2022-02-17

8.  Researching COVID-19 in progressive MS requires a globally coordinated, multi-disciplinary and multi-stakeholder approach-perspectives from the International Progressive MS Alliance.

Authors:  Paola Zaratin; Brenda Banwell; Timothy Coetzee; Giancarlo Comi; Anthony Feinstein; Robert Hyde; Marco Salvetti; Kathryn Smith
Journal:  Mult Scler J Exp Transl Clin       Date:  2022-05-03

Review 9.  Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis.

Authors:  Anne Parkinson; Crystal Brunoro; Jack Leayr; Vanessa Fanning; Katrina Chisholm; Janet Drew; Jane Desborough; Christine Phillips
Journal:  Health Expect       Date:  2022-02-04       Impact factor: 3.318
  9 in total

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