| Literature DB >> 31601605 |
Ellaina Andersson1,2, Cari McIlduff3,4, Karen Turner3, Sue Thomas4, Jadnah Davies4, Elizabeth J Elliott2,5, Stewart Einfeld6.
Abstract
INTRODUCTION: The population-based (Lililwan) study of fetal alcohol spectrum disorder (FASD) revealed a high prevalence of FASD in the remote communities of the Fitzroy Valley, Western Australia (WA) and confirmed anecdotal reports from families and teachers that challenging child behaviours were a significant concern. In response, Marninwarntikura Women's Resource Centre initiated a partnership with researchers from The University of Sydney to bring the positive parenting program (Triple P) to the Valley. Triple P has been effective in increasing parenting skills and confidence, and improving child behaviour in various Indigenous communities. METHODS AND ANALYSIS: Extensive consultation with community leaders, service providers, Aboriginal health networks and academic institutions was undertaken and is ongoing. Based on community consultations, the intervention was adapted to acknowledge local cultural, social and language complexities. Carers of children born after 1 January 2002 and living in the Fitzroy Valley are invited to participate in Group Triple P, including additional Stepping Stones strategies for children with complex needs. Programme are delivered by local community service workers, trained and accredited as Triple P providers or 'parent coaches'. Assessments for parent coach pretraining and post-training includes their perceived ability to deliver the intervention and the cultural appropriateness of the programme. Carers complete preintervention and postintervention and 6-month follow-up assessments of parenting practices, self-efficacy and child behaviour. ETHICS AND DISSEMINATION: Approval was granted by the University of Sydney Human Ethics Committee, WA Aboriginal Health Ethics Committee, WA Country Health Services Ethics Committee and Kimberley Aboriginal Health Planning Forum. Consultation with community is imperative for efficacy, engagement, community ownership and sustainability of the programme, and will be ongoing until findings are disseminated. Anonymous findings will be disseminated through peer-reviewed journals, community feedback sessions and scientific forums. © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.Entities:
Keywords: FASD; aboriginal; fetal alcohol spectrum disorder; indigenous; parenting; triple P
Year: 2019 PMID: 31601605 PMCID: PMC6797340 DOI: 10.1136/bmjopen-2019-032559
Source DB: PubMed Journal: BMJ Open ISSN: 2044-6055 Impact factor: 2.692
Figure 1Jandu Yani U protocol study design. CAPES-DD,Child Adjustment and Parent Efficacy Scale for Children with DevelopmentalDisabilities.
Summary of parent coach outcome measures and assessment timeline
| Method | Measure | Outcome | T1 | T2 | T3 | T4 | T5 |
| Quantitative |
| Self-efficacy and confidence in conducting family interventions. | X | X | X | ||
|
| Cultural appropriateness, of materials, resources, content and process of training. | X | X | ||||
|
| Perception of influence in family, community and job position. | X | X | X | |||
| Qualitative |
| Acceptability of the research protocol and Triple P, experience of delivering the programme. | X |
T1, pretraining (day 1); T2, post-training (day 4); T3, postaccreditation (4-6 weeks post-training); T4, 2-3 months postaccreditation; T5, 4 months postaccreditation.
Summary of family outcome measures
| Method | Target | Measure | Outcome | T1 | T2 | T3 |
| Quantitative | Carer |
| Use of dysfunctional discipline practices. | X | X | X |
|
| Parent confidence in managing problem behaviour. | X | X | X | ||
|
| Carer depressive and anxiety symptoms and stress. | X | X | X | ||
|
| Perception of influence in family and community. | X | X | X | ||
|
| Satisfaction with programme and outcomes. | X | ||||
| Qualitative | Carer |
| Acceptability, experience of attending the programme. | X | ||
| Quantitative | Child |
| Frequency and severity of challenging behaviours. | X | X | X |
|
| Issues in different behaviour domains. | X | X | X | ||
|
| Visual representation of % achievement of carer goals. | X | X |
T1, preintervention; T2, postintervention; T3, 6 month follow-up.