Literature DB >> 31599982

Navigating the cartographies of trust: how patients and carers establish the credibility of online treatment claims.

Alan Petersen1, Claire Tanner2, Megan Munsie2.   

Abstract

Digital media offer citizens novel ways of 'enacting' health and illness, and treatment and care. However, while digital media may so 'empower' citizens, those searching for credible information will be confronted with various, often-conflicting claims that may have 'disempowering' effects. This article uses Gieryn's concept of the 'cultural cartography' to explore the criteria that patients and carers employ in establishing the credibility of information on alleged treatments. Drawing on data from interviews with Australian patients and carers who have travelled or considered travelling abroad for unproven commercial stem cell treatments, the article examines how individuals assess rival sources of epistemic authority - science-based and non-science-based - as they search for credible information. As we argue, in a context where conventional treatment options are perceived to be limited or non-existent - which is likely to be the case with those suffering severe, life-limiting conditions - and the credibility of sources uncertain, matters of opinion and belief are prone to being interpreted as matters of fact, with potentially far-reaching implications for citizens' health. Revealing the mechanisms by which individuals ascribe credibility to health information, we conclude, has become crucial as digital media assume a growing role in health and healthcare and governments encourage citizens to become 'digitally literate'. Chapters
© 2019 The Authors. Book Compilation © 2019 Foundation for the Sociology of Health & Illness/John Wiley & Sons Ltd.

Entities:  

Keywords:  credibility; cultural cartography; digital technology; hope; stem cell tourism; trust

Mesh:

Year:  2019        PMID: 31599982     DOI: 10.1111/1467-9566.12872

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  2 in total

Review 1.  International stem cell tourism: a critical literature review and evidence-based recommendations.

Authors:  Samantha Lyons; Shival Salgaonkar; Gerard T Flaherty
Journal:  Int Health       Date:  2022-03-02       Impact factor: 2.473

Review 2.  Unproven stem cell interventions: A global public health problem requiring global deliberation.

Authors:  Zubin Master; Kirstin R W Matthews; Mohamed Abou-El-Enein
Journal:  Stem Cell Reports       Date:  2021-06-08       Impact factor: 7.765

  2 in total

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