Christian Philipp Kamm1,2, L Barin3,4, C Gobbi5,6, C Pot7, P Calabrese8, A Salmen9, L Achtnichts10, J Kesselring11, M A Puhan3, V von Wyl3. 1. Department of Neurology, Inselspital, University Hospital Bern and University of Bern, Bern, Switzerland. christian.kamm@luks.ch. 2. Neurocentre, Luzerner Kantonsspital, 6000, Luzern, Switzerland. christian.kamm@luks.ch. 3. Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland. 4. Research Institute for the Evaluation of Public Policies (FBK-IRVAPP), via Santa Croce 77, 38122, Trento, Italy. 5. Faculty of Biomedical Sciences, Università Della Svizzera Italiana (USI), 6900, Lugano, Switzerland. 6. Department of Neurology, Neurocenter of Southern Switzerland, 6900, Lugano, Switzerland. 7. Service of Neurology and Neuroscience Research Center, Lausanne University Hospital, and University of Lausanne, Lausanne, Switzerland. 8. Behavioral Neurology and Neuropsychology, Division of Molecular and Cognitive Neuroscience, Department of Psychology, University of Basel, Basel, Switzerland. 9. Department of Neurology, Inselspital, University Hospital Bern and University of Bern, Bern, Switzerland. 10. Department of Neurology, Cantonal Hospital Aarau, Aarau, Switzerland. 11. Rehabilitation Centre, Kliniken Valens, Valens, Switzerland.
Abstract
BACKGROUND: Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching. OBJECTIVE: To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing. METHODS: Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors. RESULTS: 386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%). CONCLUSIONS: A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
BACKGROUND:Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching. OBJECTIVE: To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing. METHODS: Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors. RESULTS: 386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%). CONCLUSIONS: A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
Entities:
Keywords:
Diagnosis communication; First diagnostic consultation; Multiple sclerosis; Patient satisfaction; Registries; Shared decision making
Authors: A Solari; V Martinelli; M Trojano; A Lugaresi; F Granella; A Giordano; M Messmer Uccelli; R D'Alessandro; E Pucci; P Confalonieri; C Borreani Journal: Mult Scler Date: 2010-09-21 Impact factor: 6.312
Authors: Milo A Puhan; Nina Steinemann; Christian P Kamm; Stephanie Müller; Jens Kuhle; Roland Kurmann; Pasquale Calabrese; Jürg Kesselring; Viktor von Wyl Journal: Swiss Med Wkly Date: 2018-05-16 Impact factor: 2.193
Authors: Vladeta Ajdacic-Gross; Nina Steinemann; Gábor Horváth; Stephanie Rodgers; Marco Kaufmann; Yanhua Xu; Christian P Kamm; Jürg Kesselring; Zina-Mary Manjaly; Chiara Zecca; Pasquale Calabrese; Milo A Puhan; Viktor von Wyl Journal: Front Neurol Date: 2021-07-06 Impact factor: 4.003