Literature DB >> 31588024

Stopping Eating and Drinking by Advance Directives (SED by AD) in Assisted Living and Nursing Homes.

James L Wright1, Peter M Jaggard2, Timothy Holahan3.   

Abstract

The Ethics Subcommittee of AMDA-The Society for Post-Acute and Long-Term Care Medicine ("The Society") presents arguments for and against Stopping Eating and Drinking by Advance Directives (SED by AD). SED by AD is a type of advance directive in which a proxy is instructed to stop offering food and fluids to a person when they reach a certain stage of dementia. Although most conversations regarding SED by AD focus on patient autonomy and the right to determine one's care, we propose that the ethical principle of justice-the obligation to treat all individuals equally regardless of race, gender, and physical or cognitive ability-is the decisive principle in this controversy. We also suggest that implementing SED by AD can violate a physician's obligation to beneficence and nonmaleficence. On the other hand, we identify with the families of our patients who see the refusal to follow an advance directive as an injustice of the highest order. In the end, The Society is convinced that no choice can be made here without practicing an injustice: if one refuses to implement SED by AD, one violates the autonomy of the person who drew up the advance directive. If, on the other hand, one refuses food and fluid to a resident who still accepts food, one risks practicing an injustice against that person as they are now. Recognizing that we have the greatest responsibility to our patients as they present to us in the residential setting, The Society recommends against implementing SED by AD in residents who still accept food and fluids, implementing instead, a policy of comfort feeding for those with advanced dementia.
Copyright © 2019 AMDA – The Society for Post-Acute and Long-Term Care Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Alzheimer''s disease; Dementia; Ethics; MOLST; POLST; POST; advance care planning; advance directives; physician-assisted death; stopping eating and drinking; suicide pact

Mesh:

Year:  2019        PMID: 31588024     DOI: 10.1016/j.jamda.2019.07.026

Source DB:  PubMed          Journal:  J Am Med Dir Assoc        ISSN: 1525-8610            Impact factor:   4.669


  6 in total

1.  Mealtime nonverbal behaviors in nursing home staff and residents with dementia: Behavioral analyses of videotaped observations.

Authors:  Wen Liu; Yelena Perkhounkova; Kristine Williams; Melissa Batchelor; Maria Hein
Journal:  Geriatr Nurs       Date:  2022-02-04       Impact factor: 2.361

2.  "Discussion or silent accompaniment: a grounded theory study about voluntary stopping of eating and drinking in Switzerland".

Authors:  Sabrina Stängle; André Fringer
Journal:  BMC Palliat Care       Date:  2022-05-24       Impact factor: 3.113

3.  Biathanatos revisited: Anabaptist perspectives on voluntarily stopping eating and drinking in the face of terminal illness.

Authors:  Aubrey DeVeny Incorvaia
Journal:  Palliat Care Soc Pract       Date:  2022-05-31

4.  Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries.

Authors:  Shelley A Sternberg; Shiri Shinan-Altman; Ladislav Volicer; David J Casarett; Jenny T van der Steen
Journal:  Geriatrics (Basel)       Date:  2021-04-22

5.  Family caregivers' advocacy in voluntary stopping of eating and drinking: A holistic multiple case study.

Authors:  Jasmin Eppel-Meichlinger; Sabrina Stängle; Hanna Mayer; André Fringer
Journal:  Nurs Open       Date:  2021-11-09

6.  Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying.

Authors:  Stanley A Terman; Karl E Steinberg; Nathaniel Hinerman
Journal:  BMC Med Ethics       Date:  2022-10-06       Impact factor: 2.834

  6 in total

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