Literature DB >> 31581793

ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder.

Micah O Mazurek1, Gary Stobbe2, Rachel Loftin3, Beth A Malow4, Mavara M Agrawal5, Mark Tapia6, Amy Hess7, Justin Farmer8, Nancy Cheak-Zamora9, Karen Kuhlthau10, Kristin Sohl9.   

Abstract

Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice.

Entities:  

Keywords:  adolescents; adults; autism spectrum disorders; health services; medical comorbidity; psychiatric comorbidity

Mesh:

Year:  2019        PMID: 31581793     DOI: 10.1177/1362361319879616

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  7 in total

1.  "They looked at me as a person, not just a diagnosis": A qualitative study of patient and parent satisfaction with a specialized primary care clinic for autistic adults.

Authors:  Brittany N Hand; Daniel Gilmore; Lauren Harris; Amy Darragh; Christopher Hanks; Daniel Coury; Susan Moffatt-Bruce; Jennifer Garvin
Journal:  Autism Adulthood       Date:  2021-12-07

Review 2.  Mental Health Services for Autistic Individuals Across the Lifespan: Recent Advances and Current Gaps.

Authors:  Brenna B Maddox; Kelsey S Dickson; Nicole A Stadnick; David S Mandell; Lauren Brookman-Frazee
Journal:  Curr Psychiatry Rep       Date:  2021-08-17       Impact factor: 5.285

Review 3.  Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood.

Authors:  Natasha Malik-Soni; Andrew Shaker; Helen Luck; Anne E Mullin; Ryan E Wiley; M E Suzanne Lewis; Joaquin Fuentes; Thomas W Frazier
Journal:  Pediatr Res       Date:  2021-03-25       Impact factor: 3.953

4.  The role of the NP in primary care of adults with autism spectrum disorder.

Authors:  Jacqueline Robert; Elsie Duff
Journal:  Nurse Pract       Date:  2021-10-01

Review 5.  Five Ways Providers Can Improve Mental Healthcare for Autistic Adults: A Review of Mental Healthcare Use, Barriers to Care, and Evidence-Based Recommendations.

Authors:  Daniel Gilmore; Anne Longo; Morgan Krantz; Deondray Radford; Brittany N Hand
Journal:  Curr Psychiatry Rep       Date:  2022-08-15       Impact factor: 8.081

6.  Project Extension for Community Health Outcomes (ECHO) Autism: A Successful Model to Increase Capacity in Community-Based Care.

Authors:  Kristin Sohl; Agnieszka Rynkiewicz; Valeria Nanclares-Nogués; Alicia Brewer Curran; Julie Scorah; Mandy Steiman; Catherine Lord; Roma A Vasa; Agnieszka Słopień; Małgorzata Janas-Kozik; Izabela Łucka; Artur Mazur
Journal:  Brain Sci       Date:  2022-02-28

7.  Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals.

Authors:  Nicole Ginn Dreiling; Michal L Cook; Elena Lamarche; Laura Grofer Klinger
Journal:  Autism       Date:  2021-07-03
  7 in total

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