Literature DB >> 31535261

Differing Thresholds for Overriding Parental Refusals of Life-Sustaining Treatment.

Hannah Gerdes1, John Lantos2.   

Abstract

When should doctors seek protective custody to override a parent's refusal of potentially lifesaving treatment for their child? The answer to this question seemingly has different answers for different subspecialties of pediatrics. This paper specifically looks at different thresholds for physicians overriding parental refusals of life-sustaining treatment between neonatology, cardiology, and oncology. The threshold for mandating treatment of premature babies seems to be a survival rate of 25-50%. This is not the case when the treatment in question is open heart surgery for a child with congenital heart disease. Most cardiologists would not pursue legal action when parents refuse treatment, unless the anticipated survival rate after surgery is above 90%. In pediatric oncology, there are case reports of physicians requesting and obtaining protective custody for cancer treatment when the reported mortality rates are 40-50%. Such differences might be attributed to differences in care, a reasonable prioritization of quality of life over survival, or the role uncertainty plays on prognoses, especially for the extremely young. Nonetheless, other, non-medical factors may have a significant effect on inconsistencies in care across these pediatric subspecialties and require further examinations.

Entities:  

Keywords:  Cardiology; Decision-making; End-of-life care; Neonatology; Oncology

Year:  2020        PMID: 31535261     DOI: 10.1007/s10730-019-09384-6

Source DB:  PubMed          Journal:  HEC Forum        ISSN: 0956-2737


  10 in total

Review 1.  Refusal of Treatment of Childhood Cancer: A Systematic Review.

Authors:  Amy E Caruso Brown; Amy R Slutzky
Journal:  Pediatrics       Date:  2017-11-16       Impact factor: 7.124

2.  Congenital Heart Defects: Amazing Advances and Ongoing Challenges.

Authors:  Kathy J Jenkins
Journal:  J Am Coll Cardiol       Date:  2017-06-06       Impact factor: 24.094

3.  Between-hospital variation in treatment and outcomes in extremely preterm infants.

Authors:  Matthew A Rysavy; Lei Li; Edward F Bell; Abhik Das; Susan R Hintz; Barbara J Stoll; Betty R Vohr; Waldemar A Carlo; Seetha Shankaran; Michele C Walsh; Jon E Tyson; C Michael Cotten; P Brian Smith; Jeffrey C Murray; Tarah T Colaizy; Jane E Brumbaugh; Rosemary D Higgins
Journal:  N Engl J Med       Date:  2015-05-07       Impact factor: 91.245

4.  Hypoplastic left heart syndrome: Prognosis and management options.

Authors:  D S Fruitman
Journal:  Paediatr Child Health       Date:  2000-05       Impact factor: 2.253

Review 5.  Guidelines for the Management of Extremely Premature Deliveries: A Systematic Review.

Authors:  Úrsula Guillén; Elliott M Weiss; David Munson; Pierre Maton; Ann Jefferies; Mikael Norman; Gunnar Naulaers; Joana Mendes; Lincoln Justo da Silva; Petr Zoban; Thor W R Hansen; Mikko Hallman; Maria Delivoria-Papadopoulos; Shigeharu Hosono; Susan G Albersheim; Constance Williams; Elaine Boyle; Kei Lui; Brian Darlow; Haresh Kirpalani
Journal:  Pediatrics       Date:  2015-07-13       Impact factor: 7.124

Review 6.  Outcomes for extremely premature infants.

Authors:  Hannah C Glass; Andrew T Costarino; Stephen A Stayer; Claire M Brett; Franklyn Cladis; Peter J Davis
Journal:  Anesth Analg       Date:  2015-06       Impact factor: 5.108

7.  Intensive care for extreme prematurity--moving beyond gestational age.

Authors:  Jon E Tyson; Nehal A Parikh; John Langer; Charles Green; Rosemary D Higgins
Journal:  N Engl J Med       Date:  2008-04-17       Impact factor: 91.245

Review 8.  Hypoplastic left heart syndrome: consensus and controversies in 2007.

Authors:  Gil Wernovsky; Nancy Ghanayem; Richard G Ohye; Emile A Bacha; Jeffrey P Jacobs; J William Gaynor; Sarah Tabbutt
Journal:  Cardiol Young       Date:  2007-09       Impact factor: 1.093

9.  Parental rights and medical decisions.

Authors:  Tim Dare
Journal:  Paediatr Anaesth       Date:  2009-07-24       Impact factor: 2.556

10.  Nobody likes premies: the relative value of patients' lives.

Authors:  A Janvier; I Leblanc; K J Barrington
Journal:  J Perinatol       Date:  2008-07-17       Impact factor: 2.521

  10 in total
  1 in total

1.  Decision-Making at End-of-Life for Children With Cancer: A Systematic Review and Meta-Bioethical Analysis.

Authors:  Luis Enrique Juárez-Villegas; Myriam M Altamirano-Bustamante; Marta M Zapata-Tarrés
Journal:  Front Oncol       Date:  2021-10-15       Impact factor: 6.244

  1 in total

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