Ute Goerling1, Hermann Faller2, Beate Hornemann3, Klaus Hönig4, Corinna Bergelt5, Imad Maatouk6, Barbara Stein7, Martin Teufel8, Yesim Erim9, Franziska Geiser10, Alexander Niecke11, Bianca Senf12, Martin Wickert13, Antje Büttner-Teleaga14, Joachim Weis15. 1. Charité Comprehensive Cancer Center, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Helath, Invalidenstrasse 80, 10115 Berlin, Germany. Electronic address: ute.goerling@charite.de. 2. Department of Medical Psychology and Psychotherapy, Medical Sociology and Rehabilitation Sciences, and Comprehensive Cancer Center Mainfranken, Klinikstrasse 3, 97070 Würzburg, Germany. 3. University Clinic Centre Dresden, Comprehensive Cancer Center, Fetscherstrasse 74, 01307 Dresden, Germany. 4. Department of Psychosomatic Medicine and Psychotherapy, Ulm University Clinic, Comprehensive Cancer Center Ulm, Albert-Einstein-Allee 23, 89081 Ulm, Germany. 5. University Clinic Centre Hamburg, Hubertus Wald - University Cancer Center, Martinistrasse 52, 20246 Hamburg, Germany. 6. Department Internal Medicine and Psychosomatics, University Clinic Centre Heidelberg, Im Neuenheimer Feld 460, 69120 Heidelberg, Germany. 7. Department Psychosomatic Medicine, Clinic Centre Nürnberg, Paracelsus University, Prof. Ernst-Nathan-Strasse 1, 90419 Nürnberg, Germany. 8. Department of Psychosomatic Medicine and Psychotherapy, University of Duisburg-Essen, Comprehensive Cancer Center Essen (WTZ) and LVR Hospital, Virchowstrasse 174, 45030 Essen, Germany. 9. Department Psychosomatic Medicine and Psychotherapy, Friedrich-Alexander University of Erlangen-Nürnberg, Schwabbachanlage 6, 91054 Erlangen, Germany. 10. Department Psychosomatic Medicine, University Clinic Centre Bonn, Sigmund-Freud-Strasse 25, 53127 Bonn, Germany. 11. Department Psychosomatic Medicine & Centre Psychooncology (CePO), University Clinic Centre Cologne, Kerpener Strasse 62, 50937 Köln, Germany. 12. University Clinic Centre Frankfurt, Comprehensive Cancer Center, Theodor-Stern-Kai 7, 60590 Frankfurt/a.M., Germany. 13. University Clinic Centre Tübingen, Comprehensive Cancer Center, Herrenberger Strasse 23, 72070 Tübingen, Germany. 14. Institute for Cognitive Science, Woosuk University, 565-701 Samrye-up, Wanjugun, Jeonbuk, South Korea. 15. Department Self-help Research, University Clinic Centre Freiburg, Comprehensive Cancer Center, Hugstetter Strasse 49, 79106 Freiburg, Germany.
Abstract
OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety. METHODS: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months. RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01). CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months. PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information.
OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancerpatients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety. METHODS: In a multicenter study in Germany, 1398 cancerpatients were evaluated in terms of this at baseline, after 6 and 12 months. RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01). CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months. PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancerpatients to improve satisfaction with information.
Authors: Theresia Pichler; Amy Rohrmoser; Anne Letsch; C Benedikt Westphalen; Ulrich Keilholz; Volker Heinemann; Mario Lamping; Philipp J Jost; Kristina Riedmann; Peter Herschbach; Ute Goerling Journal: Support Care Cancer Date: 2020-09-03 Impact factor: 3.603