Literature DB >> 31463810

Development and Usability Testing of a Decision Support App for Women Considering Breast Reconstruction Surgery.

Pin-Jun Lin1, Su-Ying Fang2, Yao-Lung Kuo3,4.   

Abstract

Women with breast cancer have difficulty deciding whether to undergo breast reconstruction when mastectomy is necessary. A computer-based decision aid that can be individualized to provide both surgery information and value clarification may be helpful for women considering breast reconstruction surgery. The objectives of this study are to program a prototype of an application (app) with a value clarification exercise and to evaluate the pilot usability, feasibility, and efficacy of the app. In phase 1, a prototype app called Pink Journey for use on the iPhone OS (IOS) platform was created following the framework of shared decision making. In phase 2, 11 women who were given the option of reconstruction by a breast surgeon were recruited from July 2017 to December 2017. A pretest-posttest design was adopted to test the usability and feasibility of the app. The results showed that the women who used the app reported significantly less decisional conflict after intervention on each subscale of the Decision Conflict scale, i.e., "being informed", "uncertainty", "social support", "effective decision", and "value clarification". This research provides preliminary data indicating that Pink Journey holds promise for decreasing decision conflict. Most women felt that the app was both helpful and user-friendly. The app increased their participation in decision making, helped them obtain more accurate risk perceptions, and clarified their values. It also helped the women make decisions regarding breast reconstruction more confidently.

Entities:  

Keywords:  Breast reconstruction; Decision aid; Shared decision making

Year:  2021        PMID: 31463810     DOI: 10.1007/s13187-019-01612-4

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  3 in total

1.  Post-treatment regret among young breast cancer survivors.

Authors:  Sara Fernandes-Taylor; Joan R Bloom
Journal:  Psychooncology       Date:  2011-05       Impact factor: 3.894

2.  Trajectories of psychological distress among Chinese women diagnosed with breast cancer.

Authors:  Wendy W T Lam; George A Bonanno; Anthony D Mancini; Samuel Ho; Miranda Chan; Wai Ka Hung; Amy Or; Richard Fielding
Journal:  Psychooncology       Date:  2010-10       Impact factor: 3.894

3.  Attitudes and Decisional Conflict Regarding Breast Reconstruction Among Breast Cancer Patients.

Authors:  Sharon L Manne; Neal Topham; Laurie Kirstein; Shannon Myers Virtue; Kristin Brill; Katie A Devine; Tina Gajda; Sara Frederick; Katie Darabos; Kristen Sorice
Journal:  Cancer Nurs       Date:  2016 Nov/Dec       Impact factor: 2.760

  3 in total
  3 in total

1.  One Size Does Not Fit All; Patient Preference for Breast Reconstruction.

Authors:  Shreya Raman; Lauren E Powell; Emily S Andersen; Lauren C Nigro
Journal:  Eplasty       Date:  2022-09-21

2.  Long-Term Effectiveness of a Decision Support App (Pink Journey) for Women Considering Breast Reconstruction Surgery: Pilot Randomized Controlled Trial.

Authors:  Su-Ying Fang; Pin-Jun Lin; Yao-Lung Kuo
Journal:  JMIR Mhealth Uhealth       Date:  2021-12-10       Impact factor: 4.773

Review 3.  Shared Decision-Making in Breast Reconstruction for Breast Cancer Patients: A Scoping Review.

Authors:  Xuejing Li; Meiqi Meng; Junqiang Zhao; Xiaoyan Zhang; Dan Yang; Jiaxin Fang; Junxin Wang; Liu Han; Yufang Hao
Journal:  Patient Prefer Adherence       Date:  2021-12-10       Impact factor: 2.711

  3 in total

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