Literature DB >> 31463631

Developing an Evaluation Framework for Parent Education and Training in Autism Spectrum Disorder: Results of a Multi-stakeholder Process.

John-Joe Dawson-Squibb1, Petrus J de Vries2.   

Abstract

Despite the need for parent education and training programmes in autism spectrum disorder (ASD), there is no generally-accepted evaluation framework to select programmes for different settings. Here we generated an evaluation framework using a multi-stakeholder, implementation science approach. Purposive sampling identified ASD experts, implementation/health systems experts, and parents/carers of individuals with ASD. A consensus-building stakeholder workshop with 14 stakeholders and thematic analysis was used to generate themes and components of the framework. Main themes included 'Outcomes' (parent, child, family and community), 'Processes and Procedures' (accessibility, acceptability, psychological process, and referral pathways) and 'Implementation Landscape' (sustainability, scalability, integration and coordination, and monitoring and evaluation). We propose that the evaluation framework and Evaluation Framework Checklist generated could guide clinicians, researchers and policy-makers.

Entities:  

Keywords:  Autism spectrum disorder; Evaluation framework; Implementation science; Parent education and training

Year:  2019        PMID: 31463631     DOI: 10.1007/s10803-019-04176-w

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  31 in total

1.  Evidence based medicine: what it is and what it isn't.

Authors:  D L Sackett; W M Rosenberg; J A Gray; R B Haynes; W S Richardson
Journal:  BMJ       Date:  1996-01-13

Review 2.  Parent Education and Training for autism spectrum disorders: Scoping the evidence.

Authors:  John-Joe Dawson-Squibb; Eugene L Davids; Ashley J Harrison; Maggie A Molony; Petrus J de Vries
Journal:  Autism       Date:  2019-05-09

Review 3.  Issues and theoretical constructs regarding parent education for autism spectrum disorders.

Authors:  Amanda M Steiner; Lynn K Koegel; Robert L Koegel; Whitney A Ence
Journal:  J Autism Dev Disord       Date:  2012-06

4.  Bridging the research-to-practice gap in autism intervention: an application of diffusion of innovation theory.

Authors:  Hilary E Dingfelder; David S Mandell
Journal:  J Autism Dev Disord       Date:  2011-05

5.  Parent-Mediated Intervention for One-Year-Olds Screened as At-Risk for Autism Spectrum Disorder: A Randomized Controlled Trial.

Authors:  Linda R Watson; Elizabeth R Crais; Grace T Baranek; Lauren Turner-Brown; John Sideris; Linn Wakeford; Jessica Kinard; J Steven Reznick; Katrina L Martin; Sallie W Nowell
Journal:  J Autism Dev Disord       Date:  2017-11

6.  Understanding autism and understanding my child with autism: an evaluation of a group parent education program in rural Australia.

Authors:  Judy Farmer; Andrea Reupert
Journal:  Aust J Rural Health       Date:  2013-02       Impact factor: 1.662

7.  Randomized controlled trial of the focus parent training for toddlers with autism: 1-year outcome.

Authors:  Iris Oosterling; Janne Visser; Sophie Swinkels; Nanda Rommelse; Rogier Donders; Tim Woudenberg; Sascha Roos; Rutger Jan van der Gaag; Jan Buitelaar
Journal:  J Autism Dev Disord       Date:  2010-12

8.  Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: a randomized clinical trial.

Authors:  Karen Bearss; Cynthia Johnson; Tristram Smith; Luc Lecavalier; Naomi Swiezy; Michael Aman; David B McAdam; Eric Butter; Charmaine Stillitano; Noha Minshawi; Denis G Sukhodolsky; Daniel W Mruzek; Kylan Turner; Tiffany Neal; Victoria Hallett; James A Mulick; Bryson Green; Benjamin Handen; Yanhong Deng; James Dziura; Lawrence Scahill
Journal:  JAMA       Date:  2015-04-21       Impact factor: 157.335

Review 9.  Using theory of change to design and evaluate public health interventions: a systematic review.

Authors:  Erica Breuer; Lucy Lee; Mary De Silva; Crick Lund
Journal:  Implement Sci       Date:  2016-05-06       Impact factor: 7.327

Review 10.  "Scaling-out" evidence-based interventions to new populations or new health care delivery systems.

Authors:  Gregory A Aarons; Marisa Sklar; Brian Mustanski; Nanette Benbow; C Hendricks Brown
Journal:  Implement Sci       Date:  2017-09-06       Impact factor: 7.327

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  5 in total

1.  A Study on the Use of Milieu Teaching to Promote Overseas Marketers' Communication Skills and Confidence in Language Learning.

Authors:  Simeng Jia; Xue Zhao
Journal:  Front Psychol       Date:  2022-06-22

2.  Community-based Parent Education for Caregivers of Children Newly Diagnosed with Autism Spectrum Disorder.

Authors:  Anna Milgramm; Laura L Corona; Cortney Janicki-Menzie; Kristin V Christodulu
Journal:  J Autism Dev Disord       Date:  2021-04-24

3.  Implementing the WHO caregivers skills training program with caregivers of autistic children via telehealth in rural communities.

Authors:  Cecilia Montiel-Nava; Megan Tregnago; Jeanne Marshall; Kristin Sohl; Alicia Brewer Curran; Melissa Mahurin; Melissa Warne-Griggs; Pamela Dixon
Journal:  Front Psychiatry       Date:  2022-08-29       Impact factor: 5.435

4.  The use of social robots with children and young people on the autism spectrum: A systematic review and meta-analysis.

Authors:  Athanasia Kouroupa; Keith R Laws; Karen Irvine; Silvana E Mengoni; Alister Baird; Shivani Sharma
Journal:  PLoS One       Date:  2022-06-22       Impact factor: 3.752

5.  The Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries.

Authors:  Aubrey J Kumm; Marisa Viljoen; Petrus J de Vries
Journal:  J Autism Dev Disord       Date:  2021-06-13
  5 in total

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