| Literature DB >> 31462451 |
Benjamin Derbez1,2, Antoine de Pauw3, Dominique Stoppa-Lyonnet3,4, Frédéric Galactéros5,6, Sandrine de Montgolfier6,7.
Abstract
Familial disclosure of genetic information is an important, long-standing ethical issue that still gives rise to much debate. In France, recent legislation has created an innovative and unprecedented procedure that allows healthcare professionals (HCPs), under certain conditions, to disclose relevant information to relatives of a person carrying a deleterious genetic mutation. This article will analyse how HCPs in two medical genetics clinics have reacted to these new legal provisions and show how their reticence to inform the patients' relatives on their behalf leads them to use this option sparingly. © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.Entities:
Keywords: bioethics; breast cancer; family communication; genetics; hemochromatosis; law
Year: 2019 PMID: 31462451 DOI: 10.1136/medethics-2018-105212
Source DB: PubMed Journal: J Med Ethics ISSN: 0306-6800 Impact factor: 2.903