Literature DB >> 31423911

Are Patient Decision Aids Used in Clinical Practice after Rigorous Evaluation? A Survey of Trial Authors.

Dawn Stacey1,2, Victoria Suwalska1,2, Laura Boland1,2, Krystina B Lewis3,2, Justin Presseau1,2, Richard Thomson4.   

Abstract

Background. Patient decision aids (PtDAs) are effective interventions to support patient involvement in health care decisions, but there is little use in practice. Our study aimed to determine subsequent PtDA use in clinical practice following published randomized controlled trials. Design. A descriptive study using an e-mail-embedded questionnaire survey targeting authors of 133 trials included in Cochrane Reviews of PtDAs (106 authors). We classified PtDA level of use as a) implementation, defined as integrating within care processes; b) dissemination to target users with planned strategies; and c) diffusion, defined as passive, unplanned spread. We conducted content analysis to identify barriers and enablers guided by the Ottawa Model of Research Use. Results. Ninety-eight authors responded (92.5%) on 108 trialed PtDAs. Reported levels of use were implementation (n = 29; 28%), dissemination to target user(s) (n = 9; 9%), and diffusion (n = 7; 7%); 57 (55%) reported no uptake, and 1 had no response (1%). Barriers to use in clinical practice were identified at the level of researchers (e.g., lack of posttrial plan), PtDAs (e.g., outdated, delivery mechanism), clinicians (e.g., disagreed with PtDA use), and practice environment (e.g., infrastructure support; funding). Enablers were online delivery, organizational endorsement (e.g., professional organization, charity, government), and design for and integration into the care process. Limitations. Self-report bias and potential for recall bias. Conclusions. Only 44% of PtDA trial authors indicated some level of subsequent use following their trial. The most commonly reported barriers were lack of funding, outdated PtDAs, and clinician disagreement with PtDA use. To improve subsequent use, researchers should codesign PtDAs with end users to ensure fit with clinical practice and develop an implementation plan. National systems (e.g., platforms, endorsement, funding) can enable use.

Entities:  

Keywords:  dissemination; health care; implementation science; patient decision aid

Mesh:

Year:  2019        PMID: 31423911     DOI: 10.1177/0272989X19868193

Source DB:  PubMed          Journal:  Med Decis Making        ISSN: 0272-989X            Impact factor:   2.583


  17 in total

1.  A multidomain decision support tool to prevent falls in older people: the FinCH cluster RCT.

Authors:  Philippa A Logan; Jane C Horne; Frances Allen; Sarah J Armstrong; Allan B Clark; Simon Conroy; Janet Darby; Chris Fox; John Rf Gladman; Maureen Godfrey; Adam L Gordon; Lisa Irvine; Paul Leighton; Karen McCartney; Gail Mountain; Kate Robertson; Katie Robinson; Tracey H Sach; Susan Stirling; Edward Cf Wilson; Erika J Sims
Journal:  Health Technol Assess       Date:  2022-01       Impact factor: 4.014

2.  How are patient-related characteristics associated with shared decision-making about treatment? A scoping review of quantitative studies.

Authors:  Sascha M Keij; Joyce E de Boer; Anne M Stiggelbout; Wändi Bruine de Bruin; Ellen Peters; Saïda Moaddine; Marleen Kunneman; Arwen H Pieterse
Journal:  BMJ Open       Date:  2022-05-24       Impact factor: 3.006

3.  Recognizing patient partner contributions to health research: a mixed methods research protocol.

Authors:  Dean A Fergusson; Manoj M Lalu; Grace Fox; Stuart G Nicholls; Maureen Smith; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2022-06-06

4.  Cancer, Fertility and Me: Developing and Testing a Novel Fertility Preservation Patient Decision Aid to Support Women at Risk of Losing Their Fertility Because of Cancer Treatment.

Authors:  Georgina L Jones; Rachael H Moss; Frances Darby; Neda Mahmoodi; Bob Phillips; Jane Hughes; Katharina S Vogt; Diana M Greenfield; Grete Brauten-Smith; Jacqui Gath; Tonia Campbell; Daniel Stark; Galina Velikova; John A Snowden; Ellissa Baskind; Mariano Mascerenhas; Daniel Yeomanson; Jonathan Skull; Sheila Lane; Hilary L Bekker; Richard A Anderson
Journal:  Front Oncol       Date:  2022-06-30       Impact factor: 5.738

5.  Chronic Disease Decision Making and "What Matters Most".

Authors:  Terri R Fried; Richard L Street; Andrew B Cohen
Journal:  J Am Geriatr Soc       Date:  2020-02-11       Impact factor: 5.562

6.  Effect of a Mammography Screening Decision Aid for Women 75 Years and Older: A Cluster Randomized Clinical Trial.

Authors:  Mara A Schonberg; Christine E Kistler; Adlin Pinheiro; Alicia R Jacobson; Gianna M Aliberti; Maria Karamourtopoulos; Michelle Hayes; Bridget A Neville; Carmen L Lewis; Christina C Wee; Angela Fagerlin; Larissa Nekhlyudov; Edward R Marcantonio; Mary Beth Hamel; Roger B Davis
Journal:  JAMA Intern Med       Date:  2020-06-01       Impact factor: 21.873

7.  Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital.

Authors:  Marion Danner; Friedemann Geiger; Kai Wehkamp; Jens Ulrich Rueffer; Christine Kuch; Leonie Sundmacher; Tove Skjelbakken; Anne Rummer; Anna Novelli; Marie Debrouwere; Fueloep Scheibler
Journal:  BMJ Open       Date:  2020-10-10       Impact factor: 2.692

8.  Improving treatment decision-making in bipolar II disorder: a phase II randomised controlled trial of an online patient decision-aid.

Authors:  Alana Fisher; Rachael Keast; Daniel Costa; Louise Sharpe; Vijaya Manicavasagar; Josephine Anderson; Ilona Juraskova
Journal:  BMC Psychiatry       Date:  2020-09-17       Impact factor: 3.630

9.  Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.

Authors:  Holly O Witteman; Kristin G Maki; Gratianne Vaisson; Jeanette Finderup; Krystina B Lewis; Karina Dahl Steffensen; Caroline Beaudoin; Sandrine Comeau; Robert J Volk
Journal:  Med Decis Making       Date:  2021-06-19       Impact factor: 2.583

10.  Choice of dialysis modality: patients' experiences and quality of decision after shared decision-making.

Authors:  Jeanette Finderup; Kirsten Lomborg; Jens Dam Jensen; Dawn Stacey
Journal:  BMC Nephrol       Date:  2020-08-05       Impact factor: 2.388

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