Literature DB >> 31401141

How to Advance Research, Education, and Training in the Study of Rare Diseases.

Stephen C Groft1, Rashmi Gopal-Srivastava2, Evan S Dellon3, Sandeep K Gupta4.   

Abstract

Entities:  

Mesh：

Year:  2019        PMID： 31401141      PMCID： PMC8034804          DOI： 10.1053/j.gastro.2019.08.010

Source DB:  PubMed          Journal:  Gastroenterology        ISSN： 0016-5085            Impact factor:   22.682


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  4 in total

Review 1.  Socio-economic burden of rare diseases: A systematic review of cost of illness evidence.

Authors:  Aris Angelis; David Tordrup; Panos Kanavos
Journal:  Health Policy       Date:  2014-12-30       Impact factor: 2.980

2.  Consortium of Eosinophilic Gastrointestinal Disease Researchers: Advancing the Field of Eosinophilic GI Disorders Through Collaboration.

Authors:  Sandeep K Gupta; Gary W Falk; Seema S Aceves; Mirna Chehade; Margaret H Collins; Evan S Dellon; Nirmala Gonsalves; Ikuo Hirano; Vincent A Mukkuda; Kathryn A Peterson; Jonathan Spergel; Guang-Yu Yang; Glenn T Furuta; Marc E Rothenberg
Journal:  Gastroenterology       Date:  2018-11-17       Impact factor: 22.682

3.  Individuals affected by eosinophilic gastrointestinal disorders have complex unmet needs and frequently experience unique barriers to care.

Authors:  Girish Hiremath; Ellyn Kodroff; Mary J Strobel; Melissa Scott; Wendy Book; Cathy Reidy; Shay Kyle; Denise Mack; Kathleen Sable; Pablo Abonia; Jonathan Spergel; Sandeep K Gupta; T Glenn Furuta; Marc E Rothenberg; Evan S Dellon
Journal:  Clin Res Hepatol Gastroenterol       Date:  2018-03-31       Impact factor: 2.947

4.  Substantial Variability in Biopsy Practice Patterns Among Gastroenterologists for Suspected Eosinophilic Gastrointestinal Disorders.

Authors:  Evan S Dellon; Margaret H Collins; Peter A Bonis; John Leung; Kelley E Capocelli; Ranjan Dohil; Gary W Falk; Glenn T Furuta; Calies Menard-Katcher; Sandeep K Gupta; Ikuo Hirano; Girish S Hiremath; Amir F Kagalwalla; Barry K Wershil; Chris A Liacouras; Amanda B Muir; Vincent A Mukkada; Philip E Putnam; Alain M Schoepfer; Alex Straumann; John M Wo; Guang-Yu Yang; Marc E Rothenberg; Nirmala Gonsalves
Journal:  Clin Gastroenterol Hepatol       Date:  2016-04-22       Impact factor: 11.382
  4 in total
  3 in total

1.  Educational and knowledge gaps within the European reference network on rare endocrine conditions.

Authors:  Violeta Iotova; Camilla Schalin-Jäntti; Petra Bruegmann; Manuela Broesamle; Natasa Bratina; Vallo Tillmann; Olaf Hiort; Alberto M Pereira
Journal:  Endocr Connect       Date:  2021-01       Impact factor: 3.335

2.  Mapping, Infrastructure, and Data Analysis for the Brazilian Network of Rare Diseases: Protocol for the RARASnet Observational Cohort Study.

Authors:  Domingos Alves; Diego Bettiol Yamada; Filipe Andrade Bernardi; Isabelle Carvalho; Márcio Eloi Colombo Filho; Mariane Barros Neiva; Vinícius Costa Lima; Têmis Maria Félix
Journal:  JMIR Res Protoc       Date:  2021-01-22

3.  Beyond Competence: Efficiency in American Biomedicine.

Authors:  Julia Knopes; Ariel Cascio
Journal:  Cult Med Psychiatry       Date:  2022-09-30
  3 in total

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