Ellie B Pinsker1,2, Joanna E M Sale2,3, Monique A M Gignac4,5, Timothy R Daniels1,6, Dorcas E Beaton2,4. 1. Division of Orthopaedic Surgery, St. Michael's Hospital, Toronto, Ontario, Canada. 2. Institute of Health Policy, Management& Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada. 3. Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada. 4. Institute of Work & Health, Toronto, Ontario, Canada. 5. Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada. 6. Department of Surgery, University of Toronto, Toronto, Ontario, Canada.
Abstract
OBJECTIVE: To understand patients' experiences of ankle reconstruction for treatment of end-stage ankle osteoarthritis. METHODS: Individuals were recruited from a cohort of persons who had undergone total ankle replacement or ankle fusion. English-speaking individuals who had surgery at least one year prior were invited to participate. Semi-structured, face-to-face interviews relying on a phenomenological approach were conducted in a private hospital clinic room. RESULTS: Twenty-five adults (12 women, 13 men), ages 25-82 years, were interviewed for 1-2 hours. Participants commonly described a state of having to keep careful watch for potential environmental challenges. 'Vigilance' was related to ongoing symptoms (i.e. pain, stiffness) and concerns regarding balance, stability, and potential damage to the fused ankle or implant. Vigilance was described along a continuum with higher levels associated with stress and mental exhaustion. Vigilance effected participants' perception of their surgical outcome, with high vigilance levels linked to negative perceptions of outcome. The degree to which individuals perceived the need for vigilance was influenced by environmental factors like uneven ground or crowds. Contrary to descriptions of vigilance in the coping literature, vigilance related to ankle reconstruction constituted a situational, rather than dispositional, response. CONCLUSION: Vigilance and its associated burden are not captured by current instruments. The mental load and worry associated with vigilance was important to patients, distinct from related pain or functional status. Thus, reducing high levels of vigilance appears to be an appropriate target for patient-centered treatment outcomes. A thorough outcome battery for ankle reconstruction should consider this domain. This article is protected by copyright. All rights reserved. This article is protected by copyright. All rights reserved.
OBJECTIVE: To understand patients' experiences of ankle reconstruction for treatment of end-stage ankle osteoarthritis. METHODS: Individuals were recruited from a cohort of persons who had undergone total ankle replacement or ankle fusion. English-speaking individuals who had surgery at least one year prior were invited to participate. Semi-structured, face-to-face interviews relying on a phenomenological approach were conducted in a private hospital clinic room. RESULTS: Twenty-five adults (12 women, 13 men), ages 25-82 years, were interviewed for 1-2 hours. Participants commonly described a state of having to keep careful watch for potential environmental challenges. 'Vigilance' was related to ongoing symptoms (i.e. pain, stiffness) and concerns regarding balance, stability, and potential damage to the fused ankle or implant. Vigilance was described along a continuum with higher levels associated with stress and mental exhaustion. Vigilance effected participants' perception of their surgical outcome, with high vigilance levels linked to negative perceptions of outcome. The degree to which individuals perceived the need for vigilance was influenced by environmental factors like uneven ground or crowds. Contrary to descriptions of vigilance in the coping literature, vigilance related to ankle reconstruction constituted a situational, rather than dispositional, response. CONCLUSION: Vigilance and its associated burden are not captured by current instruments. The mental load and worry associated with vigilance was important to patients, distinct from related pain or functional status. Thus, reducing high levels of vigilance appears to be an appropriate target for patient-centered treatment outcomes. A thorough outcome battery for ankle reconstruction should consider this domain. This article is protected by copyright. All rights reserved. This article is protected by copyright. All rights reserved.