Literature DB >> 31361436

Using social media to educate women and healthcare providers on endometriosis: preliminary results.

Márcia Mendonça Carneiro1,2,3, Barbara Lopes Farace1,2, Luisa Silva de Carvalho Ribeiro1,2, Raphaela Cristina Conrado C Silverio1,2, Thais Moreira1,2, Agnaldo Lopes da Silva Filho1,2, Ana Luiza Lunardi Rocha Baroni1,2, Márcia Cristina França Ferreira1,2.   

Abstract

OBJECTIVE: This study aimed to evaluate the performance of our Facebook fan page and compare it to similar pages.
METHODS: The authors reviewed page-specific metrics provided by Facebook, including number of fans, their age and sex, and country of origin; number of views, likes, and shares tied to our posts. A search for similar fan pages using keyword "endometriosis" found pages in Portuguese, English, and Spanish. They were analyzed for country of origin, authors, number of fans and posts, and were compared to our page.
RESULTS: Our fan page went online on April 2016 and 127 posts have been published up to December 2017. Most of its 1746 fans (89% women; 11% men) were Brazilians (n=1677). Our audience comprised primarily women aged 25-34 (39%) and 35-44 (30%) years. The most viewed posts discussed thrombosis and oral contraceptives (n =11078); continuous use of oral contraceptives (n=6448); deep endometriosis (n=4425); intrauterine levonorgestrel system (n=4045); IVF and endometriosis (n=2885); and endometriosis and cancer (n=2431). Our search found 399 Facebook pages from 44 different countries. The United States (n=81), Brazil (n=49), and the United Kingdom (n=46) topped the list of countries hosting pages, while most of the fan pages were written in English. The majority of the pages were active and 20% claimed they were based on science. Physicians administered four of the 10 most popular pages. Page heterogeneity prevented comparisons between them.
CONCLUSION: Men and women have visited our Facebook fan page to obtain information on endometriosis. The pages found in our search were exceedingly heterogeneous and were not compared. Developing pages with sound information is an important step toward educating individuals about endometriosis and helping them make informed choices on available treatments.

Entities:  

Keywords:  endometriosis; patient education; social media

Mesh:

Year:  2020        PMID: 31361436      PMCID: PMC6993160          DOI: 10.5935/1518-0557.20190048

Source DB:  PubMed          Journal:  JBRA Assist Reprod        ISSN: 1517-5693


  18 in total

1.  Internet use by the public to search for health-related information.

Authors:  Khalid M AlGhamdi; Noura A Moussa
Journal:  Int J Med Inform       Date:  2012-01-03       Impact factor: 4.046

2.  Social Media: A Path to Health Literacy.

Authors:  Michelle Roberts; Lizz Callahan; Catina O'Leary
Journal:  Stud Health Technol Inform       Date:  2017

Review 3.  Googling endometriosis: a systematic review of information available on the Internet.

Authors:  Martin Hirsch; Shivani Aggarwal; Claire Barker; Colin J Davis; James M N Duffy
Journal:  Am J Obstet Gynecol       Date:  2016-11-11       Impact factor: 8.661

4.  Public perceptions of endometriosis: perspectives from both genders.

Authors:  Divya K Shah; Molly B Moravek; Anjel Vahratian; Vanessa K Dalton; Dan I Lebovic
Journal:  Acta Obstet Gynecol Scand       Date:  2010-05       Impact factor: 3.636

5.  Time elapsed from onset of symptoms to diagnosis of endometriosis in a cohort study of Brazilian women.

Authors:  M S Arruda; C A Petta; M S Abrão; C L Benetti-Pinto
Journal:  Hum Reprod       Date:  2003-04       Impact factor: 6.918

6.  The etiquette of endometriosis: stigmatisation, menstrual concealment and the diagnostic delay.

Authors:  Kate Seear
Journal:  Soc Sci Med       Date:  2009-08-21       Impact factor: 4.634

Review 7.  Future directions in endometriosis research.

Authors:  Thomas M D'Hooghe; Sophie Debrock; Christel Meuleman; Joseph A Hill; Jason M Mwenda
Journal:  Obstet Gynecol Clin North Am       Date:  2003-03       Impact factor: 2.844

8.  Patients' and health professionals' use of social media in health care: motives, barriers and expectations.

Authors:  Marjolijn L Antheunis; Kiek Tates; Theodoor E Nieboer
Journal:  Patient Educ Couns       Date:  2013-07-27

9.  How doctors view and use social media: a national survey.

Authors:  James Brown; Christopher Ryan; Anthony Harris
Journal:  J Med Internet Res       Date:  2014-12-02       Impact factor: 5.428

Review 10.  A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication.

Authors:  S Anne Moorhead; Diane E Hazlett; Laura Harrison; Jennifer K Carroll; Anthea Irwin; Ciska Hoving
Journal:  J Med Internet Res       Date:  2013-04-23       Impact factor: 5.428

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  4 in total

1.  Clinical efficacy of turtle shell decocted pills for endometriosis and their influence on cellular immunity.

Authors:  Yunfang Wu; Jichen Zhang; Ting Wang; Kai Lou
Journal:  Am J Transl Res       Date:  2022-03-15       Impact factor: 4.060

2.  The virtual infertility community: a qualitative analysis of patient experiences shared on Instagram.

Authors:  Hanna R Perone; Alexandra M Herweck; Hannah M Stump; Hannah M Levine; Adriana J Wong; Jose Carugno
Journal:  J Assist Reprod Genet       Date:  2021-01-07       Impact factor: 3.412

3.  Examining the Influence on Perceptions of Endometriosis via Analysis of Social Media Posts: Cross-sectional Study.

Authors:  Julian Matthias Metzler; Dimitrios Rafail Kalaitzopoulos; Laurin Burla; Gabriel Schaer; Patrick Imesch
Journal:  JMIR Form Res       Date:  2022-03-18

Review 4.  Gynecology Meets Big Data in the Disruptive Innovation Medical Era: State-of-Art and Future Prospects.

Authors:  Rola Khamisy-Farah; Leonardo B Furstenau; Jude Dzevela Kong; Jianhong Wu; Nicola Luigi Bragazzi
Journal:  Int J Environ Res Public Health       Date:  2021-05-11       Impact factor: 3.390

  4 in total

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