Literature DB >> 31348193

Survey Development: Community Involvement in the Design and Implementation Process.

Allyson Kelley1, Christopher Piccione, Aryn Fisher, Karly Matt, Michael Andreini, Dyani Bingham.   

Abstract

Documenting Tribal health priorities is needed to inform research agendas, policy efforts, advocacy, and funding. However, published literature rarely documents the methods used to develop surveys in Indigenous communities. This methods paper includes two objectives: (1) increase knowledge and understanding about the importance of community involvement in public health activities; and (2) provide an example of how the Rocky Mountain Tribal Leaders Council Epidemiology Center (RMTEC) worked with one Tribal community to develop a health priorities survey. This paper describes how the RMTEC worked with a Tribal community and Tribal College students to develop, pilot, and revise a health priorities survey. Recommendations focus on the need for more culturally-responsive survey methods, the importance of building Tribal capacity for health research, and the value of piloting surveys in communities prior to implementation.

Entities:  

Year:  2019        PMID: 31348193      PMCID: PMC6662621          DOI: 10.1097/PHH.0000000000001016

Source DB:  PubMed          Journal:  J Public Health Manag Pract        ISSN: 1078-4659


  11 in total

1.  Methods for pre-testing and piloting survey questions: illustrations from the KENQOL survey of health-related quality of life.

Authors:  A Bowden; J A Fox-Rushby; L Nyandieka; J Wanjau
Journal:  Health Policy Plan       Date:  2002-09       Impact factor: 3.344

2.  Tribal participatory research: mechanisms of a collaborative model.

Authors:  Philip A Fisher; Thomas J Ball
Journal:  Am J Community Psychol       Date:  2003-12

3.  Using community-based participatory research to address health disparities.

Authors:  Nina B Wallerstein; Bonnie Duran
Journal:  Health Promot Pract       Date:  2006-06-07

4.  Building and maintaining trust in a community-based participatory research partnership.

Authors:  Suzanne Christopher; Vanessa Watts; Alma Knows His Gun McCormick; Sara Young
Journal:  Am J Public Health       Date:  2008-06-12       Impact factor: 9.308

5.  What is participatory research?

Authors:  A Cornwall; R Jewkes
Journal:  Soc Sci Med       Date:  1995-12       Impact factor: 4.634

6.  Critical reflections from a community-based participatory research course.

Authors:  Allyson Kelley
Journal:  Educ Health (Abingdon)       Date:  2013 Sep-Dec

7.  Research ethics and indigenous communities.

Authors:  Allyson Kelley; Annie Belcourt-Dittloff; Cheryl Belcourt; Gordon Belcourt
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

Review 8.  Uncovering the benefits of participatory research: implications of a realist review for health research and practice.

Authors:  Justin Jagosh; Ann C Macaulay; Pierre Pluye; Jon Salsberg; Paula L Bush; Jim Henderson; Erin Sirett; Geoff Wong; Margaret Cargo; Carol P Herbert; Sarena D Seifer; Lawrence W Green; Trisha Greenhalgh
Journal:  Milbank Q       Date:  2012-06       Impact factor: 4.911

9.  Conducting research with tribal communities: sovereignty, ethics, and data-sharing issues.

Authors:  Anna Harding; Barbara Harper; Dave Stone; Catherine O'Neill; Patricia Berger; Stuart Harris; Jamie Donatuto
Journal:  Environ Health Perspect       Date:  2011-09-02       Impact factor: 9.031

10.  Critical epidemiology in action: Research for and by indigenous peoples.

Authors:  Erica Prussing
Journal:  SSM Popul Health       Date:  2018-09-10
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  2 in total

1.  Psychometric evaluation of protective measures in Native STAND: A multi-site cross-sectional study of American Indian Alaska Native high school students.

Authors:  Allyson Kelley; Thomas McCoy; Megan Skye; Michelle Singer; Stephanie Craig Rushing; Tamara Perkins; Caitlin Donald; Kavita Rajani; Brittany Morgan; Kelley Milligan; Tosha Zaback; William Lambert
Journal:  PLoS One       Date:  2022-05-17       Impact factor: 3.752

2.  Using a Multisectoral Approach to Advance Health Equity in Rural Arizona: Community-Engaged Survey Development and Implementation Study.

Authors:  Mark Remiker; Samantha Sabo; Dulce Jiménez; Alexandra Samarron Longorio; Carmenlita Chief; Heather Williamson; Nicolette Teufel-Shone
Journal:  JMIR Form Res       Date:  2021-05-12
  2 in total

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