Literature DB >> 31343967

"If You Want to Know About the Book, Ask the Author": Enhancing Community Engagement Through Participatory Research in Clinical Mental Health Settings.

Miraj U Desai1,2, Chyrell Bellamy1, Kimberly Guy1, Mark Costa1, Maria J O'Connell1, Larry Davidson1.   

Abstract

Participatory research, in which people with lived experience of the study phenomenon are involved as collaborators, has been conducted for decades; however, these innovations have struggled to take hold in mental health settings-until recently. The slow uptake of community partnered research in mental health has been unfortunate, especially because this field already suffers from poor community relations, pervasive community mistrust, and racial and ethnic disparities. But now, people with lived experience of severe mental illness-long considered to be "incapable" of functioning as co-researchers-are beginning to be included on research teams. However, training and opportunities for conducting such work are still lacking. This report describes a two-year initiative to improve the quality and quantity of participatory research being conducted in a department of psychiatry at a large medical school, which culminated in an innovative training program for both researchers and patients, developed in direct collaboration with stakeholders. In addition to detailing this program, we also discuss the deep legacy of mental health mistrust and our own efforts to address issues of social justice and health equity.

Entities:  

Keywords:  clinical research; health disparities; mental health; participatory research; social justice

Mesh:

Year:  2019        PMID: 31343967     DOI: 10.1080/08964289.2019.1587589

Source DB:  PubMed          Journal:  Behav Med        ISSN: 0896-4289            Impact factor:   3.104


  5 in total

Review 1.  Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.

Authors:  Victoria Cluley; Alexandra Ziemann; Claire Feeley; Ellinor K Olander; Shani Shamah; Charitini Stavropoulou
Journal:  Health Expect       Date:  2022-02-17       Impact factor: 3.318

2.  Implicit organizational bias: Mental health treatment culture and norms as barriers to engaging with diversity.

Authors:  Miraj U Desai; Nadika Paranamana; Maria Restrepo-Toro; Maria O'Connell; Larry Davidson; Victoria Stanhope
Journal:  Am Psychol       Date:  2020-03-05

3.  A qualitative study on identity in individuals at clinical high risk for psychosis: " … Why does it have to be one thing?".

Authors:  Cansu Sarac; Joseph S DeLuca; Zarina R Bilgrami; Shaynna N Herrera; Jonathan J Myers; Matthew F Dobbs; Shalaila S Haas; Therese L Todd; Agrima Srivastava; Rachel Jespersen; Riaz B Shaik; Yulia Landa; Larry Davidson; Anthony J Pavlo; Cheryl M Corcoran
Journal:  Psychiatr Rehabil J       Date:  2021-06-17

4.  COVID-19 Vaccine Acceptance among an Online Sample of Sexual and Gender Minority Men and Transgender Women.

Authors:  Daniel Teixeira da Silva; Katie Biello; Willey Y Lin; Pablo K Valente; Kenneth H Mayer; Lisa Hightow-Weidman; José A Bauermeister
Journal:  Vaccines (Basel)       Date:  2021-03-01

5.  COVID-19 Related Medical Mistrust, Health Impacts, and Potential Vaccine Hesitancy Among Black Americans Living With HIV.

Authors:  Laura M Bogart; Bisola O Ojikutu; Keshav Tyagi; David J Klein; Matt G Mutchler; Lu Dong; Sean J Lawrence; Damone R Thomas; Sarah Kellman
Journal:  J Acquir Immune Defic Syndr       Date:  2021-02-01       Impact factor: 3.771

  5 in total

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