Literature DB >> 31342443

Disparities in Diagnosis and Service Access for Minority Children with ASD in the United States.

Waganesh A Zeleke1, Tammy L Hughes2, Natalie Drozda2.   

Abstract

This study examined children with an autism spectrum disorder (ASD) using data from the 2011 Survey of Pathway to Diagnosis and Services national data set (n = 1715). When comparing white and minority families, results indicate there were no differences between the child's treatment needs based on the number and type of ASD symptoms or insurance coverage. However, minority parents were less likely to contact a doctor or health care professionals about their concerns, waiting years, rather than months as described by white families, to have the child evaluated. Although both white and minority families received similar types of care (e.g., conducting developmental tests, making a referral to a specialist, suggesting that the parent discuss the concern with the school), white families reported they were more formally engaged in the diagnostic process and subsequently visited a larger variety of service providers. White parents were more satisfied with the services that their child received from doctors and other health care providers whereas minority families indicated school services were more responsiveness to their needs. Recommended outreach efforts are suggested and described.

Entities:  

Keywords:  Autism; Diagnosis; Disparity; Mental health access; Minority families

Mesh:

Year:  2019        PMID: 31342443     DOI: 10.1007/s10803-019-04131-9

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  6 in total

1.  Disparities in the quality of and access to services in children with autism spectrum disorders: a structural equation modeling.

Authors:  Mohammad Asghari Jafarabadi; Kamal Gholipour; Hassan Shahrokhi; Ayyoub Malek; Akbar Ghiasi; Hamid Pourasghari; Shabnam Iezadi
Journal:  Arch Public Health       Date:  2021-04-26

2.  Fetal Alcohol Spectrum Disorder-Issues of Misdiagnosis and Missed Diagnosis in Black Youth: A Case Report.

Authors:  Gokce Ergun; Michelle S Schultz; Eman K Rettig
Journal:  Innov Clin Neurosci       Date:  2021 Apr-Jun

3.  Analysis of Race and Sex Bias in the Autism Diagnostic Observation Schedule (ADOS-2).

Authors:  Luther G Kalb; Vini Singh; Ji Su Hong; Calliope Holingue; Natasha N Ludwig; Danika Pfeiffer; Rachel Reetzke; Alden L Gross; Rebecca Landa
Journal:  JAMA Netw Open       Date:  2022-04-01

4.  Service Use Among Transition-Age Youth with Autism Spectrum Disorder.

Authors:  Karen J Ishler; David E Biegel; Fei Wang; Tugba Olgac; Sarah Lytle; Stacy Miner; Marjorie Edguer; Ronna Kaplan
Journal:  J Autism Dev Disord       Date:  2021-04-17

5.  Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial.

Authors:  Carolyn DiGuiseppi; Steven A Rosenberg; Margaret A Tomcho; Kathryn Colborn; Kristina Hightshoe; Silvia Gutiérrez-Raghunath; Jeanette M Cordova; Jodi K Dooling-Litfin; Cordelia Robinson Rosenberg
Journal:  Autism       Date:  2020-11-27

6.  Still Left Behind: Fewer Black School-Aged Youth Receive ASD Diagnoses Compared to White Youth.

Authors:  Serene Habayeb; Lauren Kenworthy; Andrea De La Torre; Allison Ratto
Journal:  J Autism Dev Disord       Date:  2021-06-04
  6 in total

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