Literature DB >> 31308605

Addressing Health Disparities in Adults with Developmental Disabilities.

Andrea S Videlefsky1, Jeffrey M Reznik1, Janice T Nodvin1, Harry J Heiman2.   

Abstract

Adults with developmental disabilities are a growing population that experiences significant health disparities due to unmet health care and social needs. Few standardized health care guidelines are available or broadly accepted as best practices for this population. The Adult Disability Medical Healthcare (ADMH) is a community-based clinic that provides a unique multidisciplinary team-based approach to addressing the social and health care needs of adults with developmental disabilities within the framework of a Patient Centered Medical Home model. ADMH is developing the necessary research infrastructure and obtaining input from individuals with developmental disabilities, their families, and community stakeholders and is performing foundational analysis to inform the development of guidelines for evidence-based best practices for the care of adults with developmental disabilities. This will set the stage for future research evaluating the impact of these guidelines on health outcomes and the reduction of health disparities in this population. This commentary highlights a process for development of evidence-based guidelines and best practices for care of adults with developmental disabilities.

Entities:  

Keywords:  Adults; Developmental Disabilities; Health Disparities

Mesh:

Year:  2019        PMID: 31308605      PMCID: PMC6604783          DOI: 10.18865/ed.29.S2.355

Source DB:  PubMed          Journal:  Ethn Dis        ISSN: 1049-510X            Impact factor:   1.847


  14 in total

Review 1.  Comprehensive evaluation of the child with intellectual disability or global developmental delays.

Authors:  John B Moeschler; Michael Shevell
Journal:  Pediatrics       Date:  2014-09       Impact factor: 7.124

2.  Current estimate of Down Syndrome population prevalence in the United States.

Authors:  Angela P Presson; Ginger Partyka; Kristin M Jensen; Owen J Devine; Sonja A Rasmussen; Linda L McCabe; Edward R B McCabe
Journal:  J Pediatr       Date:  2013-07-23       Impact factor: 4.406

3.  Primary care of adults with developmental disabilities: Canadian consensus guidelines.

Authors:  William F Sullivan; Joseph M Berg; Elspeth Bradley; Tom Cheetham; Richard Denton; John Heng; Brian Hennen; David Joyce; Maureen Kelly; Marika Korossy; Yona Lunsky; Shirley McMillan
Journal:  Can Fam Physician       Date:  2011-05       Impact factor: 3.275

4.  Profiling health and health-related services for children with special health care needs with and without disabilities.

Authors:  Amy J Houtrow; Megumi J Okumura; Joan F Hilton; Roberta S Rehm
Journal:  Acad Pediatr       Date:  2011-10-01       Impact factor: 3.107

5.  Obesity and associated factors in adults with intellectual disability.

Authors:  K Hsieh; J H Rimmer; T Heller
Journal:  J Intellect Disabil Res       Date:  2013-11-20

6.  Life expectancy of people with intellectual disability: a 35-year follow-up study.

Authors:  K Patja; M Iivanainen; H Vesala; H Oksanen; I Ruoppila
Journal:  J Intellect Disabil Res       Date:  2000-10

Review 7.  Medical home and transition planning for children and youth with special health care needs.

Authors:  Wendelin A Burdo-Hartman; Dilip R Patel
Journal:  Pediatr Clin North Am       Date:  2008-12       Impact factor: 3.278

Review 8.  Health disparities of adults with intellectual disabilities: what do we know? What do we do?

Authors:  Gloria L Krahn; Michael H Fox
Journal:  J Appl Res Intellect Disabil       Date:  2013-07-31

9.  The influence of intellectual disability on life expectancy.

Authors:  A H Bittles; B A Petterson; S G Sullivan; R Hussain; E J Glasson; P D Montgomery
Journal:  J Gerontol A Biol Sci Med Sci       Date:  2002-07       Impact factor: 6.053

Review 10.  Healthcare for persons with intellectual and developmental disability in the community.

Authors:  David A Ervin; Brian Hennen; Joav Merrick; Mohammed Morad
Journal:  Front Public Health       Date:  2014-07-15
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