Lisa Ross DeCamp1, Nakiya Showell2, Sashini K Godage2, Kathryn M Leifheit3, Doris Valenzuela-Araujo4, Harita Shah2, Sarah Polk2. 1. Department of Pediatrics, University of Colorado School of Medicine and Children's Hospital Colorado, Aurora, CO, USA. Electronic address: lisa.decamp@childrenscolorado.org. 2. Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD USA. 3. Johns Hopkins Bloomberg School of Public Health, Baltimore, MD USA. 4. Oregon Health & Science University, Portland, OR USA.
Abstract
OBJECTIVE: Among children in low-income families 1) examine associations between parent activation and pediatric primary care outcomes and 2) explore parent perspectives on Parent-Patient Activation Measure (P-PAM) questions in relation to pediatric primary care experiences. METHODS: We examined associations between P-PAM score via Spanish- or English-language survey and healthcare outcomes abstracted from electronic medical records for parent/child dyads at an urban general pediatrics clinic. Parent perspectives were elicited via qualitative interviews with a subsample of parents who "thought aloud" during P-PAM completion. RESULTS: Among 316 Spanish (68%) and English-language parent/child dyads, we found associations between parent activation and primary care outcomes only among Spanish-language dyads and only for weight and health status. Findings from 21 interviews provided possible explanations for quantitative findings including question limitations in assessing knowledge, skills, and confidence in pediatric primary care and P-PAM cultural and linguistic appropriateness for low-income Latino populations. CONCLUSIONS: Pairing quantitative and qualitative methods provided insight on P-PAM measurement limitations and raised questions about its use in patient engagement interventions to reduce health disparities. PRACTICE IMPLICATIONS: Practices serving vulnerable children and families should consider the limitations of the P-PAM for measuring parent healthcare engagement before utilizing the P-PAM in patient engagement interventions.
OBJECTIVE: Among children in low-income families 1) examine associations between parent activation and pediatric primary care outcomes and 2) explore parent perspectives on Parent-Patient Activation Measure (P-PAM) questions in relation to pediatric primary care experiences. METHODS: We examined associations between P-PAM score via Spanish- or English-language survey and healthcare outcomes abstracted from electronic medical records for parent/child dyads at an urban general pediatrics clinic. Parent perspectives were elicited via qualitative interviews with a subsample of parents who "thought aloud" during P-PAM completion. RESULTS: Among 316 Spanish (68%) and English-language parent/child dyads, we found associations between parent activation and primary care outcomes only among Spanish-language dyads and only for weight and health status. Findings from 21 interviews provided possible explanations for quantitative findings including question limitations in assessing knowledge, skills, and confidence in pediatric primary care and P-PAM cultural and linguistic appropriateness for low-income Latino populations. CONCLUSIONS: Pairing quantitative and qualitative methods provided insight on P-PAM measurement limitations and raised questions about its use in patient engagement interventions to reduce health disparities. PRACTICE IMPLICATIONS: Practices serving vulnerable children and families should consider the limitations of the P-PAM for measuring parent healthcare engagement before utilizing the P-PAM in patient engagement interventions.
Authors: Tania Maria Caballero; Lisa Ross DeCamp; Rheanna E Platt; Harita Shah; Sara B Johnson; Erica M S Sibinga; Sarah Polk Journal: Clin Pediatr (Phila) Date: 2016-11-23 Impact factor: 1.168
Authors: Pavani Rangachari; Kathleen R May; Lara M Stepleman; Martha S Tingen; Stephen Looney; Yan Liang; Nicole Rockich-Winston; R Karl Rethemeyer Journal: Int J Environ Res Public Health Date: 2019-08-23 Impact factor: 3.390
Authors: Pavani Rangachari; Dixie D Griffin; Santu Ghosh; Kathleen R May Journal: Int J Environ Res Public Health Date: 2020-04-15 Impact factor: 3.390