Literature DB >> 31272077

On being outdoors: How people with dementia experience and deal with vulnerabilities.

Ruth Bartlett1, Tula Brannelly2.   

Abstract

Vulnerability is a problematic label routinely applied to people with dementia, yet their situated experiences of vulnerability have not been prioritised or documented. Drawing on empirical data collected using a novel methodology - walking interviews with 15 people with dementia living in Southern England, followed by a sit-down interview that included a nominated family member - this paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. Data were analysed using abductive techniques; a thematic coding framework was created from the dataset, in addition to the application of critical theories of vulnerability and disability. We found that vulnerability is characterised by a sense of 'ontological vulnerability' for the person diagnosed with the condition - that is, an awareness of failing knowledge about oneself or the 'rules' of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. These findings highlight how people with dementia experience and deal with vulnerability when outdoors, which others need to acknowledge and support to enable people with dementia and their families to work though these challenges, in a family-orientated way when risk planning.
Copyright © 2019. Published by Elsevier Ltd.

Entities:  

Keywords:  Civic life; Dementia; Disability; Lived experience; Outdoors; UK; Vulnerability

Year:  2019        PMID: 31272077     DOI: 10.1016/j.socscimed.2019.05.041

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  3 in total

Review 1.  Assessment tools for measurement of dementia-friendliness of a community: A scoping review.

Authors:  Laura G Diaz; Evelyne Durocher; Paula Gardner; Carrie McAiney; Vishal Mokashi; Lori Letts
Journal:  Dementia (London)       Date:  2022-05-11

Review 2.  Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review.

Authors:  Jacoba Huizenga; Aukelien Scheffelaar; Agnetha Fruijtier; Jean Pierre Wilken; Nienke Bleijenberg; Tine Van Regenmortel
Journal:  Int J Environ Res Public Health       Date:  2022-08-30       Impact factor: 4.614

3.  Social Citizenship Through Out-of-Home Participation Among Older Adults With and Without Dementia.

Authors:  Sophie N Gaber; Liv Thalén; Camilla W Malinowsky; Isabel Margot-Cattin; Kishore Seetharaman; Habib Chaudhury; Malcolm Cutchin; Sarah Wallcook; Anders Kottorp; Anna Brorsson; Samantha Biglieri; Louise Nygård
Journal:  J Appl Gerontol       Date:  2022-06-30
  3 in total

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