Oscar Werner1, Hamouda Abassi2, Kathleen Lavastre1, Sophie Guillaumont3, Marie-Christine Picot4, Chris Serrand5, Yves Dulac6, Nathalie Souletie6, Philippe Acar6, Charlene Bredy1, Pascal Amedro7. 1. Paediatric and Congenital Cardiology Department, M3C Regional Reference CHD Centre, University Hospital, Montpellier, France. 2. Paediatric and Congenital Cardiology Department, M3C Regional Reference CHD Centre, University Hospital, Montpellier, France; Centre for Studies and Research on Health Services and Quality of Life, EA3279, Public Health Department, Aix-Marseille University, France. 3. Paediatric and Congenital Cardiology Department, M3C Regional Reference CHD Centre, University Hospital, Montpellier, France; Paediatric Cardiology and Rehabilitation Unit, St-Pierre Institute, Palavas-Les-Flots, France. 4. Epidemiology and Clinical Research Department, University Hospital, Montpellier, France; Clinical Investigation Centre, INSERM-CIC 1411, University of Montpellier, France. 5. Epidemiology and Clinical Research Department, University Hospital, Montpellier, France. 6. Paediatric and Congenital Cardiology Department, M3C Regional Reference CHD Centre, Toulouse University Hospital, Toulouse, France. 7. Paediatric and Congenital Cardiology Department, M3C Regional Reference CHD Centre, University Hospital, Montpellier, France; Centre for Studies and Research on Health Services and Quality of Life, EA3279, Public Health Department, Aix-Marseille University, France; PhyMedExp, University of Montpellier, INSERM, CNRS, France. Electronic address: p-amedro@chu-montpellier.fr.
Abstract
OBJECTIVE: Transition education programs dedicated to adolescents and young adults with congenital heart disease (CHD) aim to facilitate transfer to adult cardiology and bring more autonomy to teenagers. This prospective controlled multicentre study analysed the factors influencing the participation in a transition education program. METHODS: CHD patients aged 13-25 y were offered to participate in the transition program. A multiple linear regression identified the explanatory factors for participation in the program. RESULTS: A total of 123 patients (mean age 19.6 ± 3.4 y) were included in the study, with 57 participants and 66 non-participants. Both groups showed similar socio-demographic and quality of life characteristics, low level of physical activity with muscular deconditioning and high exposure to risk behaviours (71% patients with ≥1 risk factor). Patients with complex CHD (OR = 4.1, P = 0.03), poor disease knowledge (OR = 0.3, P = 0.02), risk behaviours (body piercing, OR = 5.53, P = 0.01; alcohol, OR = 3.12, P = 0.06), and aged <20 y (OR = 0.29, P = 0.03), were more likely to join the program. CONCLUSION: Many risk factors influencing the participation of adolescents and young adults with CHD in transition education programs are controllable. PRACTICE IMPLICATION: Further randomized studies are necessary to evaluate the impact of transition education program on quality of life, successful transfer to adult centre and, ultimately, prognosis.
OBJECTIVE: Transition education programs dedicated to adolescents and young adults with congenital heart disease (CHD) aim to facilitate transfer to adult cardiology and bring more autonomy to teenagers. This prospective controlled multicentre study analysed the factors influencing the participation in a transition education program. METHODS: CHD patients aged 13-25 y were offered to participate in the transition program. A multiple linear regression identified the explanatory factors for participation in the program. RESULTS: A total of 123 patients (mean age 19.6 ± 3.4 y) were included in the study, with 57 participants and 66 non-participants. Both groups showed similar socio-demographic and quality of life characteristics, low level of physical activity with muscular deconditioning and high exposure to risk behaviours (71% patients with ≥1 risk factor). Patients with complex CHD (OR = 4.1, P = 0.03), poor disease knowledge (OR = 0.3, P = 0.02), risk behaviours (body piercing, OR = 5.53, P = 0.01; alcohol, OR = 3.12, P = 0.06), and aged <20 y (OR = 0.29, P = 0.03), were more likely to join the program. CONCLUSION: Many risk factors influencing the participation of adolescents and young adults with CHD in transition education programs are controllable. PRACTICE IMPLICATION: Further randomized studies are necessary to evaluate the impact of transition education program on quality of life, successful transfer to adult centre and, ultimately, prognosis.
Authors: Hamouda Abassi; Helena Huguet; Marie-Christine Picot; Marie Vincenti; Sophie Guillaumont; Annie Auer; Oscar Werner; Gregoire De La Villeon; Kathleen Lavastre; Arthur Gavotto; Pascal Auquier; Pascal Amedro Journal: Health Qual Life Outcomes Date: 2020-11-12 Impact factor: 3.186
Authors: Oscar Werner; Charlene Bredy; Kathleen Lavastre; Sophie Guillaumont; Gregoire De La Villeon; Marie Vincenti; Cristelle Gerl; Yves Dulac; Nathalie Souletie; Philippe Acar; Laurence Pages; Marie-Christine Picot; Gerard Bourrel; Agnes Oude Engberink; Elodie Million; Hamouda Abassi; Pascal Amedro Journal: Health Qual Life Outcomes Date: 2021-01-19 Impact factor: 3.186
Authors: V Pommier; H Abassi; K Lavastre; J Calderon; S Guillaumont; Y Dulac; F Auriol; C Ovaert; A Blondelon; S Hascoet; F Lecerf; C Jore; M Avesani; J-B Thambo; P Amedro Journal: Arch Pediatr Date: 2022-04-20 Impact factor: 1.820
Authors: Shelley Doucet; Jennifer Splane; Alison Luke; Kathryn E Asher; Sydney Breneol; Jackie Pidduck; Amy Grant; Emilie Dionne; Cathie Scott; Lisa Keeping-Burke; Jessie-Lee McIsaac; Jan Willem Gorter; Janet Curran Journal: Child Care Health Dev Date: 2022-03-08 Impact factor: 2.943