M-A Burckhardt1,2,3, L Fried1, K Bebbington1, M Hancock2, J A Nicholas1,3, A Roberts1,3, M B Abraham1,2,3, E A Davis1,2,3, T W Jones1,2,3. 1. Children's Diabetes Centre, Telethon Kids Institute, Perth, WA, Australia. 2. Division of Paediatrics, The University of Western Australia, Perth, WA, Australia. 3. Department of Endocrinology and Diabetes, Perth Children's Hospital, Perth, WA, Australia.
Abstract
AIM: Remote monitoring with continuous glucose monitoring (CGM) in children with Type 1 diabetes mellitus has recently become available, but little is known about caregivers' experiences of its use, particularly in younger children. The aim of this study was to explore parents' everyday experiences of using this technology. METHODS: The parents of children with Type 1 diabetes diagnosed for > 1 year, aged 2-12 years were invited to participate in a semi-structured interview. Interviews were the second phase of a randomized cross-over study using standard insulin therapy with or without CGM and remote monitoring for two 3-month periods. Open-ended questions were used to explore parents' real-life experiences of the remote monitoring and CGM system. Interviews were analysed using thematic analysis. RESULTS: Five themes related to remote monitoring emerged: (i) impact on sleep quality for the parents, (ii) peace of mind, (iii) impact on anxiety, (iv) freedom and confidence for the parents and children, and (v) impact on relationships. Furthermore, parents reported on themes related to CGM in general, such as better understanding of how to manage and control their child's diabetes and experiences related to physical or technical aspects. CONCLUSION: Overall, parents of primary school children reported that using remote monitoring and CGM was a mostly beneficial experience. However, negative aspects within the themes were also reported. These findings will help to provide a structure to discuss parent and child expectations and provide targeted education at the start of using remote monitoring and CGM.
RCT Entities:
AIM: Remote monitoring with continuous glucose monitoring (CGM) in children with Type 1 diabetes mellitus has recently become available, but little is known about caregivers' experiences of its use, particularly in younger children. The aim of this study was to explore parents' everyday experiences of using this technology. METHODS: The parents of children with Type 1 diabetes diagnosed for > 1 year, aged 2-12 years were invited to participate in a semi-structured interview. Interviews were the second phase of a randomized cross-over study using standard insulin therapy with or without CGM and remote monitoring for two 3-month periods. Open-ended questions were used to explore parents' real-life experiences of the remote monitoring and CGM system. Interviews were analysed using thematic analysis. RESULTS: Five themes related to remote monitoring emerged: (i) impact on sleep quality for the parents, (ii) peace of mind, (iii) impact on anxiety, (iv) freedom and confidence for the parents and children, and (v) impact on relationships. Furthermore, parents reported on themes related to CGM in general, such as better understanding of how to manage and control their child's diabetes and experiences related to physical or technical aspects. CONCLUSION: Overall, parents of primary school children reported that using remote monitoring and CGM was a mostly beneficial experience. However, negative aspects within the themes were also reported. These findings will help to provide a structure to discuss parent and child expectations and provide targeted education at the start of using remote monitoring and CGM.
Authors: Julia Lawton; Ruth I Hart; Barbara Kimbell; Janet M Allen; Rachel Elizabeth Jane Besser; Charlotte Boughton; Daniela Elleri; Julia Fuchs; Atrayee Ghatak; Tabitha Randell; Ajay Thankamony; Nicola Trevelyan; Roman Hovorka; David Rankin Journal: Diabetes Technol Ther Date: 2021-04-13 Impact factor: 6.118
Authors: Ruth I Hart; Barbara Kimbell; David Rankin; Janet M Allen; Charlotte K Boughton; Fiona Campbell; Carine de Beaufort; Elke Fröhlich-Reiterer; Julia Ware; Sabine E Hofer; Thomas M Kapellen; Birgit Rami-Merhar; Ajay Thankamony; Roman Hovorka; Julia Lawton Journal: Diabet Med Date: 2022-03-24 Impact factor: 4.213