Literature DB >> 31222574

Factors influencing implementation of a computerized, individualized, culturally tailored lupus decision aid in lupus clinics: a qualitative semi-structured interview study.

Haiyan Qu1, Xuejun Hu1, Jasvinder A Singh2.   

Abstract

OBJECTIVE: To identify factors that might facilitate or impede the implementation of a shared decision-making in lupus electronic tool (SMILE) in clinics by assessing perspectives of clinicians, clinic champions, and patient advocacy organization leaders.
METHODS: We conducted a series of semi-structured telephone interviews (25-45 minutes) about facilitators and barriers of implementing the SMILE decision-aid tool with 23 lupus care providers (18 physicians, 5 champions), and leaders of two patient advocacy organizations. Interviews were audio recorded, transcribed, coded, and analyzed.
RESULTS: Physicians and clinic champions were from 18 geographically diverse US clinics. The patient advocacy leaders were from the Lupus Foundation of America and the Arthritis Foundation. Most of the clinics were rheumatology specialty (94%), at university-based academic centers (72%), located in urban areas (72%), had a specialized lupus clinic (72%), were very interested (72%) in the SMILE tool and were ready to implement it (89%). Several specific factors, composed as four themes, were identified that could either facilitate or impede the implementation of the SMILE tool: (1) patient-related theme: patient recruitment and education, and the clinic visit time; (2) clinic-related theme: staff work-load and time, and physical space to view and use the SMILE tool; (3) technology-related theme: Wi-Fi connection and iPad navigation; and (4) management-related theme: influence on the clinics' daily workflow, the need of a study champion and coordination, and leadership support.
CONCLUSION: Physicians, staff, and patient advocacy leaders perceived the SMILE as a promising tool to facilitate patient-provider communication and quality improvement in lupus. Identification of the patient-, clinic-, technology-, and management-related barriers to the SMILE implementation will allow its integration into busy clinical practice workflow. Key Points • Physicians, staff and patient advocacy leaders perceived computerized lupus decision aid to be a promising tool to facilitate shared decision-making for lupus treatment. • Stakeholder identified patient-related, clinic-resource-related, technology-related and clinic-management related themes as barriers or facilitators to viewing computerized lupus decision aid during regular clinic visits.

Entities:  

Keywords:  Barriers; Decision aid; Decision aids; Decision tool; Facilitators; Kidney disease; Lupus; Lupus nephritis; Qualitative research; SLE; Shared decision-making; Shared decision-making in lupus electronic tool

Mesh:

Year:  2019        PMID: 31222574     DOI: 10.1007/s10067-019-04643-w

Source DB:  PubMed          Journal:  Clin Rheumatol        ISSN: 0770-3198            Impact factor:   2.980


  25 in total

Review 1.  Medication Nonadherence in Systemic Lupus Erythematosus: A Systematic Review.

Authors:  Pavandeep Mehat; Mohammad Atiquzzaman; John M Esdaile; Antonio AviÑa-Zubieta; Mary A De Vera
Journal:  Arthritis Care Res (Hoboken)       Date:  2017-09-21       Impact factor: 4.794

2.  Mapping Perceptions of Lupus Medication Decision-Making Facilitators: The Importance of Patient Context.

Authors:  Haiyan Qu; Richard M Shewchuk; Graciela Alarcón; Liana Fraenkel; Amye Leong; Maria Dall'Era; Jinoos Yazdany; Jasvinder A Singh
Journal:  Arthritis Care Res (Hoboken)       Date:  2016-12       Impact factor: 4.794

3.  The incidence and prevalence of systemic lupus erythematosus, 2002-2004: The Georgia Lupus Registry.

Authors:  S Sam Lim; A Rana Bayakly; Charles G Helmick; Caroline Gordon; Kirk A Easley; Cristina Drenkard
Journal:  Arthritis Rheumatol       Date:  2014-02       Impact factor: 10.995

4.  Learning from discordance in patient and physician global assessments of systemic lupus erythematosus disease activity.

Authors:  C Neville; A E Clarke; L Joseph; P Belisle; D Ferland; P R Fortin
Journal:  J Rheumatol       Date:  2000-03       Impact factor: 4.666

5.  An evaluation of health-related quality of life in patients with systemic lupus erythematosus using PROMIS and Neuro-QoL.

Authors:  Jin-Shei Lai; Jennifer L Beaumont; Sally E Jensen; Karen Kaiser; David L Van Brunt; Amy H Kao; Shih-Yin Chen
Journal:  Clin Rheumatol       Date:  2016-11-15       Impact factor: 2.980

6.  Rheumatologists' Views and Perceived Barriers to Using Patient Decision Aids in Clinical Practice.

Authors:  Jeff Y Zong; Jenny Leese; Alexandria Klemm; Eric C Sayre; Jasmina Memetovic; John M Esdaile; Linda C Li
Journal:  Arthritis Care Res (Hoboken)       Date:  2015-10       Impact factor: 4.794

7.  Hydroxychloroquine Blood Levels in Systemic Lupus Erythematosus: Clarifying Dosing Controversies and Improving Adherence.

Authors:  Laura Durcan; William A Clarke; Laurence S Magder; Michelle Petri
Journal:  J Rheumatol       Date:  2015-10-01       Impact factor: 4.666

8.  Racial/Ethnic variation in all-cause mortality among United States medicaid recipients with systemic lupus erythematosus: a Hispanic and asian paradox.

Authors:  José A Gómez-Puerta; Medha Barbhaiya; Hongshu Guan; Candace H Feldman; Graciela S Alarcón; Karen H Costenbader
Journal:  Arthritis Rheumatol       Date:  2015-03       Impact factor: 10.995

9.  Minorities with lupus nephritis and medications: a study of facilitators to medication decision-making.

Authors:  Jasvinder A Singh; Haiyan Qu; Jinoos Yazdany; Winn Chatham; Richard Shewchuk
Journal:  Arthritis Res Ther       Date:  2015-12-17       Impact factor: 5.156

10.  Individualized patient decision-aid for immunosuppressive drugs in women with lupus nephritis: study protocol of a randomized, controlled trial.

Authors:  Jasvinder A Singh; Nipam Shah; Candace Green
Journal:  BMC Musculoskelet Disord       Date:  2017-01-31       Impact factor: 2.362

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