Literature DB >> 31215167

Identifying the most prevalent unmet needs of cancer survivors in Australia: A systematic review.

Karolina Lisy1,2, Laura Langdon2, Amanda Piper2, Michael Jefford1,2,3.   

Abstract

Understanding the unmet needs of cancer survivors is crucial to inform health service planning and optimize survivorship care. This systematic review sought to identify the most prevalent unmet needs of cancer survivors in Australia, and to determine personal, disease, and treatment-related variables correlated with unmet needs. Seventeen studies were included in the review. Substantial heterogeneity across the included studies precluded statistical pooling of the data; narrative synthesis and vote counting were used to synthesize results. Unmet needs were ranked by the number of endorsements (n) each item received. The most frequently reported unmet needs of Australian cancer survivors are for help with psychosocial issues, including fear of cancer recurrence (n = 14; 14-42%), uncertainty about the future (n = 9; 12-26%), worry about partners, friends, and families (n = 8; 12-26%), help to reduce stress (n = 8; 12-34%), and sexual changes (n = 7; 11-29%). Survivors also needed more help with physical issues, including fatigue (n = 7; 10-27%) and usual activities (n = 6; 13-27%), and expressed supportive care unmet needs, including for affordable hospital car parking (n = 7; 12-26%), information about available services (n = 7; 11-33%), and peer support (n = 6; 13-26%). Anxiety, depression, and lower overall and physical quality of life were significantly correlated with greater unmet needs, as were younger age and more advanced disease.
© 2019 John Wiley & Sons Australia, Ltd.

Entities:  

Keywords:  Australia; health services needs and demand; neoplasms; review; survivorship

Mesh:

Year:  2019        PMID: 31215167     DOI: 10.1111/ajco.13176

Source DB:  PubMed          Journal:  Asia Pac J Clin Oncol        ISSN: 1743-7555            Impact factor:   2.601


  22 in total

1.  Defining research and infrastructure priorities for cancer survivorship in Australia: a modified Delphi study.

Authors:  Fiona Crawford-Williams; Bogda Koczwara; Raymond J Chan; Janette Vardy; Karolina Lisy; Julia Morris; Mahesh Iddawela; Gillian Mackay; Michael Jefford
Journal:  Support Care Cancer       Date:  2022-01-15       Impact factor: 3.603

2.  Correlates of common concerns in older cancer survivors of leukemia and lymphoma: results from the WHI LILAC study.

Authors:  Kah Poh Loh; Eric M McLaughlin; Jessica L Krok-Schoen; Oreofe O Odejide; Areej El-Jawahri; Lihong Qi; Aladdin H Shadyab; Lisa G Johnson; Electra D Paskett
Journal:  J Cancer Surviv       Date:  2022-08-18       Impact factor: 4.062

3.  A mixed method study of medical oncologists' perceived barriers and motivators to addressing long-term effects in breast cancer survivors.

Authors:  Alex J Fauer; Patricia A Ganz; Eden R Brauer
Journal:  Breast Cancer Res Treat       Date:  2022-06-29       Impact factor: 4.624

Review 4.  Mapping a decade of interventions to address the supportive care needs of individuals living with or beyond cancer: a scoping review of reviews.

Authors:  Laura Catherine Edney; Jacqueline Roseleur; Jodi Gray; Bogda Koczwara; Jonathan Karnon
Journal:  Support Care Cancer       Date:  2022-01-14       Impact factor: 3.359

5.  Facilitators and barriers to shared primary and specialist cancer care: a systematic review.

Authors:  Karolina Lisy; Jennifer Kent; Amanda Piper; Michael Jefford
Journal:  Support Care Cancer       Date:  2020-08-17       Impact factor: 3.603

6.  Rural cancer survivors' health information needs post-treatment.

Authors:  Nynikka R Palmer; Nancy E Avis; Nora F Fino; Janet A Tooze; Kathryn E Weaver
Journal:  Patient Educ Couns       Date:  2020-02-27

7.  Mapping Systematic Reviews of Breast Cancer Survivorship Interventions: A Network Analysis.

Authors:  Emma B Kemp; Olaf P Geerse; Reegan Knowles; Richard Woodman; Leila Mohammadi; Larissa Nekhlyudov; Bogda Koczwara
Journal:  J Clin Oncol       Date:  2022-02-16       Impact factor: 50.717

8.  The prevalence of anxiety and depression and its association with coping strategies, supportive care needs, and social support among women with breast cancer.

Authors:  Hassan Okati-Aliabad; Alireza Ansari-Moghadam; Mahdi Mohammadi; Shiva Kargar; Fariba Shahraki-Sanavi
Journal:  Support Care Cancer       Date:  2021-08-08       Impact factor: 3.603

9.  How Do We Define and Measure Optimal Care for Cancer Survivors? An Online Modified Reactive Delphi Study.

Authors:  Karolina Lisy; Lena Ly; Helana Kelly; Melanie Clode; Michael Jefford
Journal:  Cancers (Basel)       Date:  2021-05-11       Impact factor: 6.639

10.  Existence of late-effects instruments for cancer survivors: A systematic review.

Authors:  Hillary Klonoff-Cohen; Mounika Polavarapu
Journal:  PLoS One       Date:  2020-02-24       Impact factor: 3.240

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