Literature DB >> 31163995

Previving: How Unaffected Women with a BRCA1/2 Mutation Navigate Previvor Identity.

Hannah Getachew-Smith1, Amy A Ross1, Courtney L Scherr1, Marleah Dean2, Meredith L Clements2.   

Abstract

Receiving a positive result for a BRCA1/2 (BRCA) mutation - indicating a high lifetime risk to develop hereditary breast and ovarian cancer - can significantly alter a woman's identity. BRCA-positive women who have not been diagnosed with cancer may be labeled "previvors," which distinguishes those at-risk for developing cancer, but have not had cancer. Using semi-structured interviews (N = 25), this study explored how unaffected BRCA-positive women navigate the previvor identity. Women in this sample differed on their definitions of previvor, views of acceptance, rejection, or ambivalence toward the label, and identification as a previvor. Understanding how women interpret and embrace the previvor identity may help inform communication for those with BRCA genetic mutations, but whom have not been diagnosed with cancer.

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Year:  2019        PMID: 31163995     DOI: 10.1080/10410236.2019.1625002

Source DB:  PubMed          Journal:  Health Commun        ISSN: 1041-0236


  1 in total

1.  Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers' experience with genetic testing and counseling.

Authors:  Kate E Dibble; Laura K M Donorfio; Preston A Britner; Keith M Bellizzi
Journal:  Gynecol Oncol Rep       Date:  2022-05-02
  1 in total

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