Literature DB >> 31147671

Caring for a frail older person: the association between informal caregiver burden and being unsatisfied with support from family and friends.

Maja Lopez Hartmann1,2, Johanna De Almeida Mello3, Sibyl Anthierens2, Anja Declercq3, Thérèse Van Durme4, Sophie Cès4, Véronique Verhoeven2, Johan Wens2, Jean Macq4, Roy Remmen2.   

Abstract

BACKGROUND/
OBJECTIVE: although informal caregivers (ICG) find caring for a relative mainly satisfying, it can be difficult at times and it can lead to a state of subjective burden characterised by -among others- fatigue and stress. The objective of this study is to analyse the relationship between perceived social support and subjective burden in providing informal care to frail older people.
METHODS: a descriptive cross-sectional study was conducted using data from a large nationwide longitudinal effectiveness study. Pearson correlations were calculated between the variables for support and burden. Logistic regression models were applied to determine the association between being unsatisfied with support and burden, taking into account multiple confounding variables.
RESULTS: of the 13,229 frail older people included in this study, 85.9% (N = 11,363) had at least one informal caregiver. Almost 60% of the primary informal caregivers manifested subjective burden, measured with the 12-item Zarit-Burden-Interview (ZBI-12). The percentage of informal caregivers that were unsatisfied with support from family and friends was on average 11.5%. Logistic regression analysis showed that being unsatisfied with support is associated with burden (OR1.85; 95%CI1.53-2.23). These results were consistent for the three groups of impairment level of the frail older persons analysed.
CONCLUSIONS: the association between perceived social support and subjective caregiver burden was explored in the context of caring for frail older people. ICGs who were unsatisfied with support were more likely to experience burden. Our findings underline the importance of perceived social support in relation to caregiver burden reduction. Therefore efforts to improve perceived social support are worth evaluating.
© The Author(s) 2019. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  Informal caregivers; caregiver burden; frail older people; social support

Mesh:

Year:  2019        PMID: 31147671     DOI: 10.1093/ageing/afz054

Source DB:  PubMed          Journal:  Age Ageing        ISSN: 0002-0729            Impact factor:   10.668


  14 in total

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10.  Balancing care demands and personal needs: A typology on the reconciliation of informal dementia care with personal life based on narrative interviews.

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