Diana Zidarov1,2, Regina Visca3, Sara Ahmed4,5,6. 1. Faculty of Medicine, School of Physical and Occupational Therapy, McGill University, 5130 rue Fabre, Montreal, QC, Canada. 2. Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Montreal, QC, Canada. 3. McGill Integrated University Health Network (RUIS) Centre of Expertise in Chronic Pain, Montreal, QC, Canada. 4. Faculty of Medicine, School of Physical and Occupational Therapy, McGill University, 5130 rue Fabre, Montreal, QC, Canada. sara.ahmed@mcgill.ca. 5. Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Montreal, QC, Canada. sara.ahmed@mcgill.ca. 6. McGill Integrated University Health Network (RUIS) Centre of Expertise in Chronic Pain, Montreal, QC, Canada. sara.ahmed@mcgill.ca.
Abstract
PURPOSE: To evaluate the health-related quality of life (HRQoL) domains currently assessed by healthcare professionals (HCPs) in secondary and tertiary hospital-based chronic pain clinics and the type of clinical outcomes (CO) used. METHODS: Electronic cross-sectional survey (May to September 2016) based on domains of HRQoL included in the Patient-Reported Outcomes Measurement Information System (PROMIS) framework. RESULTS: HCPs response rate was 53% (36/68). Their mean clinical experience was 14.8 years (± 11.1), and their mean experience treating chronic pain (CP) population was 10.2 years (± 7.8). All PROMIS-HRQoL domains were assessed by HCPs (range 28-97%, mean = 64%) with a preponderance of domains related to physical health (mean = 82%). Standardized outcome measures (OMs) including performance outcomes and patient-reported outcomes (PROs) were not frequently used (mean 0.5% and 3%, respectively) for assessing HRQoL domains compared to clinician reported outcomes (patient interviews, patient observation) (mean = 87%). Forty different OMs for assessing HRQoL domains were reported, and 30% of OMs were used by more than one HCP. HCPs expressed a need (range from 2.3 to 26.3%) for using more than one type of CO for assessing most domains of HRQoL (range from 2.3 to 26.3%) with a preference of using more PROs combined with CROs. CONCLUSIONS: All domains of HRQoL are assessed by at least some HCPs for chronic pain management. Standardized OMs including performance-based measures and PROs were not frequently used, and there was no consistent use of the same OM across HCPs. A consensus among different stakeholders in chronic pain management on core domains of HRQoL and their associated OMs to promote a more evidence-based assessment is needed.
PURPOSE: To evaluate the health-related quality of life (HRQoL) domains currently assessed by healthcare professionals (HCPs) in secondary and tertiary hospital-based chronic pain clinics and the type of clinical outcomes (CO) used. METHODS: Electronic cross-sectional survey (May to September 2016) based on domains of HRQoL included in the Patient-Reported Outcomes Measurement Information System (PROMIS) framework. RESULTS: HCPs response rate was 53% (36/68). Their mean clinical experience was 14.8 years (± 11.1), and their mean experience treating chronic pain (CP) population was 10.2 years (± 7.8). All PROMIS-HRQoL domains were assessed by HCPs (range 28-97%, mean = 64%) with a preponderance of domains related to physical health (mean = 82%). Standardized outcome measures (OMs) including performance outcomes and patient-reported outcomes (PROs) were not frequently used (mean 0.5% and 3%, respectively) for assessing HRQoL domains compared to clinician reported outcomes (patient interviews, patient observation) (mean = 87%). Forty different OMs for assessing HRQoL domains were reported, and 30% of OMs were used by more than one HCP. HCPs expressed a need (range from 2.3 to 26.3%) for using more than one type of CO for assessing most domains of HRQoL (range from 2.3 to 26.3%) with a preference of using more PROs combined with CROs. CONCLUSIONS: All domains of HRQoL are assessed by at least some HCPs for chronic pain management. Standardized OMs including performance-based measures and PROs were not frequently used, and there was no consistent use of the same OM across HCPs. A consensus among different stakeholders in chronic pain management on core domains of HRQoL and their associated OMs to promote a more evidence-based assessment is needed.
Authors: María Dolores Ruiz-Fernández; Ángela María Ortega-Galán; Cayetano Fernández-Sola; José Manuel Hernández-Padilla; José Granero-Molina; Juan Diego Ramos-Pichardo Journal: Int J Environ Res Public Health Date: 2020-02-05 Impact factor: 3.390
Authors: Hiu Lam Helen Sze; Cheuk Lam Beanie Fung; Pui Pui Phoebe Cheung; Tsz Yuk Amy Chim; Ming Ho Lee; Cheuk Chi Cynthia Law; Wui Man Benson Lau Journal: Occup Ther Int Date: 2022-09-27 Impact factor: 1.565