Alexandra Rae Hodson1, Shelley Peacock2, Lorraine Holtslander2,3. 1. Faculty of Nursing, University of Regina, Saskatoon, Saskatchewan, Canada. 2. College of Nursing, University of Saskatchewan, Saskatoon, Saskatchewan, Canada. 3. University of the Witwatersrand, Johannesburg, South Africa.
Abstract
OBJECTIVE: The unique needs of caregivers of those with advanced heart failure (HF) are not effectively being met, and reports of physical and mental health challenges are common. The objective is to identify the current state of the literature related to family caregivers of persons with advanced HF, ascertain gaps that require further exploration, and provide preliminary practice recommendations based on the results. METHOD: Systematic review of quantitative and qualitative literature. A search of CINAHL, Medline, EMBASE, and PubMed identified 24 articles that met inclusion criteria. Data were analyzed using the constant comparison method and coded. Thematic analysis was used to develop themes. RESULT: Sixteen qualitative and seven quantitative studies met inclusion criteria. Analysis of these studies identified six key areas: (1) undertaking a journey in a state of flux, (2) gaining strength, (3) forgetting oneself along the way, (4) seeking out sources of support, (5) preparing for end of life, and (6) finding closure. SIGNIFICANCE OF RESULTS: The healthcare system currently struggles to meet the care demands of patients with chronic conditions such as advanced HF; as such, informal caregivers are undertaking key roles in the management of symptoms and promotion of the health of those with advanced HF. When caregivers are not adequately prepared for their role, both patient and caregiver well-being is compromised; therefore, a deeper understanding of the caregiving experience could assist in identifying the cause of caregiver anxiety and result in the development of strategies to minimize its effects. Overall, this review will also contribute to improving the current practice when working with caregivers of persons with advanced HF and serve as a basis for development of evidence informed interventions in the future.
OBJECTIVE: The unique needs of caregivers of those with advanced heart failure (HF) are not effectively being met, and reports of physical and mental health challenges are common. The objective is to identify the current state of the literature related to family caregivers of persons with advanced HF, ascertain gaps that require further exploration, and provide preliminary practice recommendations based on the results. METHOD: Systematic review of quantitative and qualitative literature. A search of CINAHL, Medline, EMBASE, and PubMed identified 24 articles that met inclusion criteria. Data were analyzed using the constant comparison method and coded. Thematic analysis was used to develop themes. RESULT: Sixteen qualitative and seven quantitative studies met inclusion criteria. Analysis of these studies identified six key areas: (1) undertaking a journey in a state of flux, (2) gaining strength, (3) forgetting oneself along the way, (4) seeking out sources of support, (5) preparing for end of life, and (6) finding closure. SIGNIFICANCE OF RESULTS: The healthcare system currently struggles to meet the care demands of patients with chronic conditions such as advanced HF; as such, informal caregivers are undertaking key roles in the management of symptoms and promotion of the health of those with advanced HF. When caregivers are not adequately prepared for their role, both patient and caregiver well-being is compromised; therefore, a deeper understanding of the caregiving experience could assist in identifying the cause of caregiver anxiety and result in the development of strategies to minimize its effects. Overall, this review will also contribute to improving the current practice when working with caregivers of persons with advanced HF and serve as a basis for development of evidence informed interventions in the future.
Entities:
Keywords:
Advanced heart failure; caregiver strain; end of life; family caregiver; palliative care
Authors: Elaine Y L Lung; Andrew Wan; Ankita Ankita; Sharon Baxter; Lisa Benedet; Zoey Li; Mehrnoush Mirhosseini; Raza M Mirza; Karla Thorpe; Christina Vadeboncoeur; Christopher A Klinger Journal: J Palliat Care Date: 2021-01-20 Impact factor: 1.980
Authors: Daisy Ja Janssen; Stephanie Mc Ament; Josiane Boyne; Jos Mga Schols; Hans-Peter Brunner-La Rocca; José Mc Maessen; Marieke Hj van den Beuken-van Everdingen Journal: Eur J Cardiovasc Nurs Date: 2020-05-05 Impact factor: 3.908