Literature DB >> 31125754

Engaging across dimensions of diversity: A cross-national perspective on mHealth tools for managing relapsing remitting and progressive multiple sclerosis.

Sara K Simblett1, Joanne Evans2, Ben Greer2, Hannah Curtis2, Faith Matcham2, Marta Radaelli3, Patricia Mulero4, Maria Jesús Arévalo4, Ashley Polhemus5, Jose Ferrao5, Peter Gamble5, Giancarlo Comi3, Til Wykes2.   

Abstract

BACKGROUND: Smartphone apps and wearable devices could augment clinical practice by detecting changes in health status for multiple sclerosis (MS). This study sought to investigate potential barriers and facilitators for uptake and sustained use in (i) people with both relapsing remitting MS (RRMS) and progressive MS (PMS) and (ii) across different countries.
METHODS: Twenty four participants with MS took part in four focus groups held in three countries (2 in the UK, 1 in Spain, and 1 in Italy) to investigate potential barriers and facilitators for mHealth technology. A systematic thematic analysis was used to extract themes and sub-themes.
RESULTS: Facilitators and barriers were organised into functional technology-related factors and non-functional health-related and user-related factors. Twelve themes captured all requirements across the three countries for both RRMS and PMS. Key requirements included accommodation for varying physical abilities, providing information and memory aids. Potential negative effects on mood and providing choice and control as part of overcoming practical challenges were identified.
CONCLUSIONS: We took a cross-national perspective and found many similarities between three European countries across people with RRMS and PMS. Future provision should accommodate the key requirements identified to engage people with MS in scalable mHealth interventions.
Copyright © 2019. Published by Elsevier B.V.

Entities:  

Keywords:  Barriers and facilitators; Engagement; Mobile health; Multiple sclerosis; mHealth

Mesh:

Year:  2019        PMID: 31125754     DOI: 10.1016/j.msard.2019.04.020

Source DB:  PubMed          Journal:  Mult Scler Relat Disord        ISSN: 2211-0348            Impact factor:   4.339


  12 in total

Review 1.  A systematic review of engagement reporting in remote measurement studies for health symptom tracking.

Authors:  Katie M White; Charlotte Williamson; Nicol Bergou; Carolin Oetzmann; Valeria de Angel; Faith Matcham; Claire Henderson; Matthew Hotopf
Journal:  NPJ Digit Med       Date:  2022-06-29

2.  Measuring outcomes that matter most to people with multiple sclerosis: the role of patient-reported outcomes.

Authors:  Giampaolo Brichetto; Paola Zaratin
Journal:  Curr Opin Neurol       Date:  2020-06       Impact factor: 5.710

3.  Creating a Digital Toolkit to Reduce Fatigue and Promote Quality of Life in Multiple Sclerosis: Participatory Design and Usability Study.

Authors:  Sarah Thomas; Andy Pulman; Huseyin Dogan; Nan Jiang; David Passmore; Keith Pretty; Beth Fairbanks; Angela Davies Smith; Peter W Thomas
Journal:  JMIR Form Res       Date:  2021-12-09

Review 4.  Mobile health (mHealth) usage, barriers, and technological considerations in persons with multiple sclerosis: a literature review.

Authors:  Elizabeth S Gromisch; Aaron P Turner; Jodie K Haselkorn; Albert C Lo; Thomas Agresta
Journal:  JAMIA Open       Date:  2020-12-15

5.  Digital Self-monitoring of Multiple Sclerosis: Interview Study With Dutch Health Care Providers on the Expected New Configuration of Roles and Responsibilities.

Authors:  Karine Wendrich; Lotte Krabbenborg
Journal:  JMIR Mhealth Uhealth       Date:  2022-04-27       Impact factor: 4.773

6.  Human-Centered Design Strategies for Device Selection in mHealth Programs: Development of a Novel Framework and Case Study.

Authors:  Ashley Marie Polhemus; Jan Novák; Jose Ferrao; Sara Simblett; Marta Radaelli; Patrick Locatelli; Faith Matcham; Maximilian Kerz; Janice Weyer; Patrick Burke; Vincy Huang; Marissa Fallon Dockendorf; Gergely Temesi; Til Wykes; Giancarlo Comi; Inez Myin-Germeys; Amos Folarin; Richard Dobson; Nikolay V Manyakov; Vaibhav A Narayan; Matthew Hotopf
Journal:  JMIR Mhealth Uhealth       Date:  2020-05-07       Impact factor: 4.773

7.  Feasibility of a Home-Based Tablet App for Dexterity Training in Multiple Sclerosis: Usability Study.

Authors:  Judith Jantine Willemijn van Beek; Erwin Everardus Henri van Wegen; Marc Berend Rietberg; Thomas Nyffeler; Stephan Bohlhalter; Christian Philipp Kamm; Tobias Nef; Tim Vanbellingen
Journal:  JMIR Mhealth Uhealth       Date:  2020-06-09       Impact factor: 4.773

8.  Patients' Measurement Priorities for Remote Measurement Technologies to Aid Chronic Health Conditions: Qualitative Analysis.

Authors:  Sara Simblett; Faith Matcham; Hannah Curtis; Ben Greer; Ashley Polhemus; Jan Novák; Jose Ferrao; Peter Gamble; Matthew Hotopf; Vaibhav Narayan; Til Wykes
Journal:  JMIR Mhealth Uhealth       Date:  2020-06-10       Impact factor: 4.773

9.  Symbol Digit Modalities Test Variant in a Smartphone App for Persons With Multiple Sclerosis: Validation Study.

Authors:  Pim van Oirschot; Marco Heerings; Karine Wendrich; Bram den Teuling; Marijn B Martens; Peter J Jongen
Journal:  JMIR Mhealth Uhealth       Date:  2020-10-05       Impact factor: 4.773

10.  Informing the Development of a Digital Health Platform Through Universal Points of Care: Qualitative Survey Study.

Authors:  Michael P Craven; Jacob A Andrews; Alexandra R Lang; Sara K Simblett; Stuart Bruce; Sarah Thorpe; Til Wykes; Richard Morriss; Chris Hollis
Journal:  JMIR Form Res       Date:  2020-11-26
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