Lucas Andreas Braun1, Bijan Zomorodbakhsch2, Christian Keinki1, Jutta Huebner3. 1. Universitätsklinikum Jena, Klinik für Innere Medizin II, Hämatologie und Internistische Onkologie, Am Klinikum 1, 07747, Jena, Germany. 2. MVZ Onkologische Kooperation Harz, Kösliner Straße 14, 38642, Goslar, Germany. 3. Universitätsklinikum Jena, Klinik für Innere Medizin II, Hämatologie und Internistische Onkologie, Am Klinikum 1, 07747, Jena, Germany. jutta.huebner@med.uni-jena.de.
Abstract
PURPOSE: The aim of this study was to evaluate cancer patients' need for information, their communication and usage of social media. METHODS: We developed a standardized questionnaire comprising sections on information needs, communication behavior and usage of social media with respect to cancer and combined this with a validated instrument on eHealth literacy for patients. This questionnaire was provided online and with the help of bloggers and leaders of social media groups, distributed in their networks. RESULTS: The Internet was the most important information source (n = 308; 77.4%). Yet, most of the participants wanted to get information from their doctor (n = 342; 85.9%). With respect to trust in a source of information, oncologists were named most often (n = 285; 71.6%). On the one hand, many participants got in contact with others, especially peers, via social media (n = 319; 80.3%) with a growing bond to their family members on the other hand (n = 324; 81.6%). The cancer diagnosis was an impulse for starting with active participation in social media for some participants (n = 196; 49.2%). CONCLUSIONS: With social media gaining importance as source of information for patients, improving the quality of information in these networks is an important task in health care systems.
PURPOSE: The aim of this study was to evaluate cancerpatients' need for information, their communication and usage of social media. METHODS: We developed a standardized questionnaire comprising sections on information needs, communication behavior and usage of social media with respect to cancer and combined this with a validated instrument on eHealth literacy for patients. This questionnaire was provided online and with the help of bloggers and leaders of social media groups, distributed in their networks. RESULTS: The Internet was the most important information source (n = 308; 77.4%). Yet, most of the participants wanted to get information from their doctor (n = 342; 85.9%). With respect to trust in a source of information, oncologists were named most often (n = 285; 71.6%). On the one hand, many participants got in contact with others, especially peers, via social media (n = 319; 80.3%) with a growing bond to their family members on the other hand (n = 324; 81.6%). The cancer diagnosis was an impulse for starting with active participation in social media for some participants (n = 196; 49.2%). CONCLUSIONS: With social media gaining importance as source of information for patients, improving the quality of information in these networks is an important task in health care systems.
Entities:
Keywords:
Cancer; Patient information; Social media; eHealth literacy; eHealth service
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