Literature DB >> 31119753

Research campaigns in the UK National Health Service: patient recruitment and questions of valuation.

Matthias Wienroth1,2, Caroline Pearce2,3, Christopher McKevitt2,3.   

Abstract

The National Institute for Health Research (NIHR) aims to improve national 'health and wealth' by providing infrastructural support to enable clinical research in National Health Service settings in England and Wales. Cognisant of the consequences of studies' failure to achieve required numbers of participants, it also actively campaigns to promote patient awareness of research, and willingness to participate in trials. In this paper, we analyse recent NIHR campaigns and policies designed to encourage patients to participate in clinical research to interrogate how they are implicated in the national bioeconomy. In doing so we expand the notion of 'clinical labour' to include the work of patient recruitment and highlight an emergent obligation on patients to contribute to research processes. Whereas once patient knowledge and experience may have been devalued, here we draw on the concept of 'assetisation' (Birch 2012) to explore the emergent relationship between healthcare system and patient as research participant. We consider how patients' contribution goes beyond the provision of standardised objects of valuation so that patients themselves may be perceived as assets to, not only recipients of, the national healthcare system.
© 2019 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  asset; bioeconomy; clinical labour; clinical research; ethics; patient recruitment; valuation

Mesh:

Year:  2019        PMID: 31119753     DOI: 10.1111/1467-9566.12957

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  2 in total

1.  Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study.

Authors:  Rose M Gilbert; Dayyanah Sumodhee; Nikolas Pontikos; Catherine Hollyhead; Angus Patrick; Samuel Scarles; Sabrina Van Der Smissen; Rodrigo M Young; Nick Nettleton; Andrew R Webster; Jocelyn Cammack
Journal:  JMIR Form Res       Date:  2022-01-31

Review 2.  An Analysis of the Learning Health System in Its First Decade in Practice: Scoping Review.

Authors:  Jodyn E Platt; Minakshi Raj; Matthias Wienroth
Journal:  J Med Internet Res       Date:  2020-03-19       Impact factor: 5.428

  2 in total

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