Literature DB >> 31115181

The evolution of family-centered care: From supporting parent-delivered interventions to a model of family integrated care.

Linda S Franck1, Karel O'Brien2,3.   

Abstract

There is increasing recognition that parents play a critical role in promoting the health outcomes of low birthweight and preterm infants. Despite a large body of literature on interventions and models to support family engagement in infant care, parent involvement in the delivery of care for such infants is still restricted in many neonatal intensive care units (NICUs). In this article, we propose a taxonomy for classifying parent-focused NICU interventions and parent-partnered care models to aid researchers, clinical teams, and health systems to evaluate existing and future approaches to care. The proposed framework has three levels: interventions to support parents, parent-delivered interventions, and multidimensional models of NICU care that explicitly incorporate parents and partners in the care of their preterm or low birthweight infant. We briefly review the available evidence for interventions at each level and highlight the strong level of research evidence to support the parent-delivered intervention of skin-to-skin contact (also known as the Kangaroo Care position) and for the Kangaroo mother care and family integrated care models of NICU care. We suggest directions for future research and model implementation to improve and scale-up parent partnership in the care of NICU infants.
© 2019 Wiley Periodicals, Inc.

Entities:  

Keywords:  Kangaroo mother care; family centered care; family integrated care; neonatal intensive care unit; parents; preterm infants; skin-to-skin care; skin-to-skin contact

Mesh:

Year:  2019        PMID: 31115181     DOI: 10.1002/bdr2.1521

Source DB:  PubMed          Journal:  Birth Defects Res            Impact factor:   2.344


  27 in total

1.  Former NICU Families Describe Gaps in Family-Centered Care.

Authors:  Krista Sigurdson; Jochen Profit; Ravi Dhurjati; Christine Morton; Melissa Scala; Lelis Vernon; Ashley Randolph; Jessica T Phan; Linda S Franck
Journal:  Qual Health Res       Date:  2020-07-25

2.  Development and psychometric evaluation of the CO-PARTNER tool for collaboration and parent participation in neonatal care.

Authors:  Nicole R van Veenendaal; Jennifer N Auxier; Sophie R D van der Schoor; Linda S Franck; Mireille A Stelwagen; Femke de Groof; Johannes B van Goudoever; Iris E Eekhout; Henrica C W de Vet; Anna Axelin; Anne A M W van Kempen
Journal:  PLoS One       Date:  2021-06-09       Impact factor: 3.240

Review 3.  Counseling parents of premature neonates on neuroimaging findings.

Authors:  Sarah M Bernstein; Madison Canfora; Monica E Lemmon
Journal:  Semin Perinatol       Date:  2021-08-20       Impact factor: 3.300

Review 4.  Do small baby units improve extremely premature infant outcomes?

Authors:  Joseph W Kaempf; Kanekal Gautham
Journal:  J Perinatol       Date:  2021-05-19       Impact factor: 2.521

5.  Relationship between social support and post-discharge mental health symptoms in mothers of preterm infants.

Authors:  Laurel Haeusslein; Dawn Gano; Caryl L Gay; Rebecca M Kriz; Robin Bisgaard; Myrna Vega; Diana M Cormier; Priscilla Joe; Valencia Walker; Jae H Kim; Carol Lin; Yao Sun; Linda S Franck
Journal:  J Reprod Infant Psychol       Date:  2021-09-29

6.  Family-Centered Care for Children and Families Impacted by Neonatal Seizures: Advice From Parents.

Authors:  Monica E Lemmon; Hannah C Glass; Renée A Shellhaas; Mary Carol Barks; Simran Bansal; Dana Annis; Jennifer L Guerriero; Betsy Pilon; Courtney J Wusthoff; Taeun Chang; Janet S Soul; Catherine J Chu; Cameron Thomas; Shavonne L Massey; Nicholas S Abend; Stephanie Rau; Elizabeth E Rogers; Linda S Franck
Journal:  Pediatr Neurol       Date:  2021-07-30       Impact factor: 3.372

7.  Exploring Adjustment and Parent-Infant Relations in Mothers of Premature Infants: Thematic Analysis Using a Multisensory Approach.

Authors:  Catalina Suarez; Pauline Adair; Nicola Doherty; David McCormack
Journal:  J Pediatr Psychol       Date:  2022-07-19

8.  A co-design of clinical virtual care pathways to engage and support families requiring neonatal intensive care in response to the COVID-19 pandemic (COVES study).

Authors:  Marsha Campbell-Yeo; Justine Dol; Brianna Richardson; Holly McCulloch; Amos Hundert; Sarah Foye; Jon Dorling; Jehier Afifi; Tanya Bishop; Rebecca Earle; Annette Elliott Rose; Darlene Inglis; Theresa Kim; Carye Leighton; Gail MacRae; Andrea Melanson; David C Simpson; Michael Smit; Leah Whitehead
Journal:  J Neonatal Nurs       Date:  2021-06-26

Review 9.  Family integrated care: Supporting parents as primary caregivers in the neonatal intensive care unit.

Authors:  Chandra Waddington; Nicole R van Veenendaal; Karel O'Brien; Neil Patel
Journal:  Pediatr Investig       Date:  2021-06-18

10.  Fathers' experiences of feeding their extremely preterm infants in family-centred neonatal intensive care: a qualitative study.

Authors:  Evalotte Mӧrelius; Sofia Brogren; Sandra Andersson; Siw Alehagen
Journal:  Int Breastfeed J       Date:  2021-06-17       Impact factor: 3.461

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