Literature DB >> 31113509

Health as the Moral Principle of Post-Genomic Society: Data-Driven Arguments Against Privacy and Autonomy.

Karoliina Snell.   

Abstract

In Finland, as well as all over the globe, great weight is put on the possibilities of large data collections and 'big data' for generating economic growth, enhancing medical research, and boosting health and wellbeing in totally new ways. This massive data gathering and usage is justified by the moral principle of improving health. The imperative of health thus legitimizes data collection, new infrastructures and innovation policy. It is also supported by the rhetoric of health promotion. New arrangements in health research and innovations in the health sector are justified, as they produce health, while the moral principle of health also obligates individual persons to pursue healthy lifestyles and become healthy citizens. I examine how, in this context of Finnish data-driven medicine, arguments related to privacy and autonomy become silenced when contrasted with the moral principle of health.

Entities:  

Keywords:  autonomy; biobanks; choice; consent; data-driven medicine; genomic knowledge; health; innovation policy; privacy; strategy

Mesh:

Year:  2019        PMID: 31113509     DOI: 10.1017/S0963180119000057

Source DB:  PubMed          Journal:  Camb Q Healthc Ethics        ISSN: 0963-1801            Impact factor:   1.284


  3 in total

1.  Precision medicine from a citizen perspective: a survey of public attitudes towards pharmacogenomics in Flanders.

Authors:  Ahmed Edris; Evi Callier; Lies Lahousse
Journal:  BMC Med Genomics       Date:  2022-09-12       Impact factor: 3.622

2.  Legacy samples in Finnish biobanks: social and legal issues related to the transfer of old sample collections into biobanks.

Authors:  Marjut Salokannel; Heta Tarkkala; Karoliina Snell
Journal:  Hum Genet       Date:  2019-10-16       Impact factor: 4.132

3.  "Here comes Bio-me": An analysis of a biobank campaign targeted at children.

Authors:  Karoliina Snell; Heta Tarkkala
Journal:  Public Underst Sci       Date:  2021-06-19
  3 in total

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