Literature DB >> 31079560

"I'm Doing My Part, I Just Need Help From the Community": Intervention Implications of Foster and Adoptive Parents' Experiences Raising Children and Young Adults With FASD.

Christie L M Petrenko1, Michelle E Alto1, Andrea R Hart2, Sarah M Freeze3, Lynn L Cole2.   

Abstract

Individuals with fetal alcohol spectrum disorders (FASD) have high rates of health care service utilization. It is vital that health care professionals understand FASD and associated family experiences to strengthen their ability to respond to family needs and tailor family-focused interventions. This study included 24 foster and adoptive parents of children and adults (aged 3-33 years) with FASD. Data were collected via individual interviews and focus groups and analyzed thematically. Consistent with a developmental psychopathology perspective, parents' experiences interacted with the individual (with FASD), family, and broader systems ecological levels. Parents undertook protective actions in an attempt to prevent secondary conditions, support their child and family, and mitigate systems barriers. They also experienced stressors at each level, and stress was increased by protective actions. The overall parenting experience was fueled by a protective parenting attitude. Findings can strengthen family-focused care practices with individuals with FASD and their families and inform novel family interventions.

Entities:  

Keywords:  fetal alcohol spectrum disorders; fetal alcohol syndrome; parenting; secondary conditions

Mesh:

Year:  2019        PMID: 31079560      PMCID: PMC6896784          DOI: 10.1177/1074840719847185

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  37 in total

Review 1.  Evidence-based review of nursing interventions to prevent secondary disabilities in fetal alcohol spectrum disorder.

Authors:  Linda M Caley; Nancy Shipkey; Theresa Winkelman; Christine Dunlap; Sara Rivera
Journal:  Pediatr Nurs       Date:  2006 Mar-Apr

2.  Prevention of secondary conditions in fetal alcohol spectrum disorders: identification of systems-level barriers.

Authors:  Christie L M Petrenko; Naira Tahir; Erin C Mahoney; Nancy P Chin
Journal:  Matern Child Health J       Date:  2014-08

3.  Findings from the Families on Track Intervention Pilot Trial for Children with Fetal Alcohol Spectrum Disorders and Their Families.

Authors:  Christie L M Petrenko; Mary E Pandolfino; Luther K Robinson
Journal:  Alcohol Clin Exp Res       Date:  2017-06-05       Impact factor: 3.455

4.  A Renewed Call to Action: The Need for Systematic Research on Interventions for FASD.

Authors:  Heather Carmichael Olson
Journal:  Alcohol Clin Exp Res       Date:  2016-07-25       Impact factor: 3.455

5.  Pediatricians' knowledge, training, and experience in the care of children with fetal alcohol syndrome.

Authors:  Sheila Gahagan; Tanya Telfair Sharpe; Michael Brimacombe; Yvonne Fry-Johnson; Robert Levine; Mark Mengel; Mary O'Connor; Blair Paley; Susan Adubato; George Brenneman
Journal:  Pediatrics       Date:  2006-09       Impact factor: 7.124

6.  Fetal alcohol spectrum disorders: neuropsychological and behavioral features.

Authors:  Sarah N Mattson; Nicole Crocker; Tanya T Nguyen
Journal:  Neuropsychol Rev       Date:  2011-04-19       Impact factor: 7.444

7.  Frequent behavioural challenges in children with fetal alcohol spectrum disorder: a needs-based assessment reported by caregivers and clinicians.

Authors:  Courtney R Green; Jessica Roane; Amy Hewitt; Nazeem Muhajarine; Christopher Mushquash; Andre Sourander; Patricia Lingley-Pottie; Patrick McGrath; James N Reynolds
Journal:  J Popul Ther Clin Pharmacol       Date:  2014-11-17

8.  Autism spectrum disorder and fetal alcohol spectrum disorder. Part I: a comparison of parenting stress.

Authors:  Shelley L Watson; Kelly D Coons; Stephanie A Hayes
Journal:  J Intellect Dev Disabil       Date:  2013-06

9.  Giving parents a voice: A qualitative study of the challenges experienced by parents of children with disabilities.

Authors:  J Aaron Resch; Gerardo Mireles; Michael R Benz; Cheryl Grenwelge; Rick Peterson; Dalun Zhang
Journal:  Rehabil Psychol       Date:  2010-05

10.  Prevalence of fetal alcohol spectrum disorder among special subpopulations: a systematic review and meta-analysis.

Authors:  Svetlana Popova; Shannon Lange; Kevin Shield; Larry Burd; Jürgen Rehm
Journal:  Addiction       Date:  2019-04-29       Impact factor: 6.526

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  4 in total

1.  The Strengths and Positive Influences of Children With Fetal Alcohol Spectrum Disorders.

Authors:  Carson Kautz-Turnbull; Tangeria R Adams; Christie L M Petrenko
Journal:  Am J Intellect Dev Disabil       Date:  2022-09-01

2.  Self-care in caregivers of children with FASD: How do caregivers care for themselves, and what are the benefits and obstacles for doing so?

Authors:  Carson Kautz; Jennifer Parr; Christie L M Petrenko
Journal:  Res Dev Disabil       Date:  2020-01-31

3.  A Mobile Health Intervention for Fetal Alcohol Spectrum Disorders (Families Moving Forward Connect): Development and Qualitative Evaluation of Design and Functionalities.

Authors:  Christie Lm Petrenko; Jennifer Parr; Carson Kautz; Cristiano Tapparello; Heather Carmichael Olson
Journal:  JMIR Mhealth Uhealth       Date:  2020-04-06       Impact factor: 4.773

4.  Initial Feasibility of the "Families Moving Forward Connect" Mobile Health Intervention for Caregivers of Children With Fetal Alcohol Spectrum Disorders: Mixed Method Evaluation Within a Systematic User-Centered Design Approach.

Authors:  Christie Lynn McGee Petrenko; Carson Christine Kautz-Turnbull; Alicia Rose Roth; Jennifer Elizabeth Parr; Cristiano Tapparello; Utku Demir; Heather Carmichael Olson
Journal:  JMIR Form Res       Date:  2021-12-02
  4 in total

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