| Literature DB >> 31069250 |
Melinda Hermanns1, Barbara K Haas1, Jerome Lisk2,3.
Abstract
Parkinson's disease (PD), a progressive neurodegenerative disorder, presents unique and daily challenges. Living with PD may limit one's physical activity and negatively affect quality of life (QOL). No studies were identified that utilized online technology to promote health in this population. The purposes of this study were to (a) assess the feasibility of an intervention that requires wearing a physical activity tracker and participating in an online support group, and (b) examine the effect of this intervention on the self-efficacy for physical activity and QOL of older adults with PD. A 12-week longitudinal pretest/posttest design was used to assess physical activity, engagement in an online support group, self-efficacy, and QOL. A postintervention questionnaire was used to capture the participants' (n = 5) experience using the physical activity tracker and an electronic tablet to engage in an online support group. The sample size of this feasibility study precluded robust quantitative analysis of QOL or self-efficacy. Findings from the open-ended questionnaire suggest technology was challenging for most participants, yet it did provide social support. Teaching effective interventions to promote self-management for increasing physical activity, and consequently improving QOL, is recommended. While technology can assist, older persons with PD may experience technological challenges.Entities:
Keywords: Parkinson’s disease; physical activity; quality of life; self-management
Year: 2019 PMID: 31069250 PMCID: PMC6492351 DOI: 10.1177/2333721419842671
Source DB: PubMed Journal: Gerontol Geriatr Med ISSN: 2333-7214
Descriptive Statistics: Categorical Demographic Variables (N = 5).
| Demographic variable | Category | Frequency ( | Percentage |
|---|---|---|---|
| Gender | |||
| Male | 3 | 60.0 | |
| Female | 2 | 40.0 | |
| Race/Ethnicity | |||
| Caucasian, non-Hispanic | 5 | 100.0 | |
| Black, non-Hispanic | 0 | 0.0 | |
| Hispanic | 0 | 0.0 | |
| Asian or Pacific Islander | 0 | 0.0 | |
| Native American or Alaskan Native | 0 | 0.0 | |
| Mixed | 0 | 0.0 | |
| Marital status | |||
| Never married | 0 | 0.0 | |
| Married/Living with significant other | 4 | 80.0 | |
| Divorced | 1 | 20.0 | |
| Widow/Widower | 0 | 0.0 | |
| Living conditions | |||
| Lives alone | 1 | 20.0 | |
| Lives with spouse or significant other | 4 | 80.0 | |
| Lives with friend or family member | 0 | 0.0 | |
| Lives in community housing | 0 | 0.0 | |
| Level of education | |||
| Less than high school | 0 | 0.0 | |
| High school graduate or GED | 0 | 0.0 | |
| Some college | 2 | 40.0 | |
| College graduate | 3 | 60.0 | |
| Physical activity level | |||
| Inactive | 0 | 0.0 | |
| Active | 4 | 80.0 | |
| Very active | 1 | 20.0 | |
Note. GED = general education development.
Descriptive Statistics: Continuous Demographic Variables (N = 5).
| Demographic variable | Range | Frequency | |
|---|---|---|---|
| Age (years) | 73.00/72.00 | 69-81 | 5 |
| Year diagnosed with Parkinson’s disease | 2013/2014 | 2010-2017 | 4 |
| Stage of Parkinson’s disease | 1.70/1.50 | 1.00-2.50 | 5 |
FACT-G Subscales, FACT-G Total Score, PAAI Individual Items, and PAAI Total Score Pretest and Posttest Percentage of Change.
| Variable | Items | Pretest sum score | Posttest sum score | Percentage change in sum scores |
|---|---|---|---|---|
| FACT-G, PWB subscale score | 118.00 | 113.00 | −4.24 | |
| FACT-G, SWB subscale score | 118.00 | 115.00 | −2.54 | |
| FACT-G, EWB subscale score | 101.00 | 101.00 | 0.00 | |
| FACT-G, FWB subscale score | 103.00 | 97.00 | −5.83 | |
| FACT-G total score | 440.00 | 426.00 | −3.18 | |
| PAAI instrument: Confidence to perform usual physical activities when/during. . . | ||||
| feeling tired | 325 | 320 | −1.54 | |
| feeling pressure from work/school | 475 | 220 | −53.68 | |
| bad weather | 485 | 380 | −21.65 | |
| experiencing personal problems | 490 | 340 | −30.62 | |
| feeling depressed | 385 | 360 | −6.49 | |
| feeling anxious | 460 | 380 | −17.39 | |
| physical discomfort with activity | 395 | 250 | −36.71 | |
| too much work at home | 430 | 320 | −25.58 | |
| have visitors | 435 | 370 | −14.94 | |
| other interesting things to do | 440 | 320 | −27.27 | |
| don’t have support from family/friends | 455 | 320 | −29.67 | |
| have other time commitments | 430 | 320 | −25.58 | |
| do not feel well | 370 | 230 | −37.84 | |
| PAAI total score | 4,585.00 | 2,620.00 | −42.86 | |
Note. Percentage change = (Posttest score–Pretest score/Pretest score) × 100; negative (–) percentage change means percentage decrease in score; positive (+) percentage change means percentage increase in score. FACT-G = Functional Assessment of Cancer Therapy–General; PAAI = Physical Activity Assessment Inventory; PWB = physical well-being; SWB = social well-being; EWB = emotional well-being.
Likes and Dislikes With Using the iPad for the Online Support Group.
| Age/gender | Likes | Dislikes | Obstacles | |
|---|---|---|---|---|
| Participant 1 | 73/female | “So I thought it was, it’s a very valuable tool. Some of the videos were really good. I read the articles. . .” | “I would have liked it better if we could have gotten everybody on it and more involved.” | “Right at the beginning was getting my login correct. But after that well, I really didn’t have one.” |
| Participant 2 | 72/female | “I seen several things they were talking about actually online.” “The videos, of course were helpful and I, I did the warm-up exercises.” | “Well frustration was just that I never felt like I got on and communicated and had a back and forth with anybody.” | “Like when I finally got it to work, I must have missed a page or something cause I went back and I did whatever I was working on trying to get that how to set up that. . .” “. . .I’d hit the wrong button. . .” “. . .and I had, you know, we got it set up; then I lost it.” |
| Participant 3 | 69/male | “. . .liked and learned it and would get an iPad” | “I didn’t have any trouble with it once I figured it out.” | Difficulty with “working the iPad,” “learning the iPad,” and “learning the language of it.” “It was just last night or night before las, I had a saved password in there and I lost it. But I put the password in and I can’t find out how to save it.” |
| Participant 4 | 69/male | “I did not like the iPad!” | “Terrible. I could never get into it. I could never open it up unless I had the support of you. . ..The problem is I, I think, is that I don’t have an interest in, like I don’t have an interest in computers. . .I did not like the iPad!” | “I could never get into it. I could never open it up unless I had the support of you.” “I didn’t grow up with computers—And we used to use punch cards when I was going to college. I mean that’s just, that’s what we did. We used real pictures and said, ‘Yes, no, yes, no, yes, no’. And uh then we would pun, put in the punch card order and see if the computer made it work. I mean it’s. . .” |
| Participant 5 | 80/male | “Well it could have been better if I’d have used it more.” | “I never got very good with it (iPad).” | “I guess just getting it to tell me what I wanted to
learn. |