Nengliang Yao1,2,3, Nan Zhang3,4, Jialin Wang3,4, Roger T Anderson2,3,5, Xinting Liu1, Jingru Lyu1, Xiwen Du2, Xiaojie Sun1,3. 1. Key Laboratory of Health Economics and Policy, School of Health Care Management, National Health Commission, Shandong University, Jinan, China. 2. Department of Public Health Sciences, University of Virginia, Charlottesville, Virginia. 3. Center for Cancer Control and Policy Research, School of Health Care Management, Shandong University, Jinan, China. 4. Shandong Cancer Hospital, Shandong Academy of Medical Sciences, Shandong University, Jinan, China. 5. Population Sciences, University of Virginia Cancer Center, Charlottesville, Virginia.
Abstract
BACKGROUND: China accounts for approximately 27% of global cancer deaths. However, to the authors' knowledge, the lasting effects of cancer and cancer treatments on patients have not been investigated in China. The authors developed a questionnaire, the China Survey of Experiences with Cancer, for Chinese cancer survivors. This article introduces the study design and domains covered in the questionnaire. METHODS: The Cancer Survivorship Supplement of the Medical Expenditure Panel Survey (MEPS) was used as a reference to develop the questionnaire. The final in-person surveys were conducted in 2015 and 2016. Samples were chosen through multistage sampling. The authors described the characteristics of the study participants and their cancer experiences. RESULTS: At the time of last follow-up, a total of 1166 patients had completed at least 1 component of the survey. Approximately 59% of the cancer survivors were aged ≥60 years. Greater than one-half of the participants had an elementary education level or less (51%) and a yearly family income of <$3174. Chinese cancer survivors were more likely to retire earlier than planned compared with American cancer survivors (37% vs 9%). The majority of Chinese cancer survivors (84%) reported that their work abilities were hindered by their cancer or cancer treatments. Approximately one-half of patients in China had to incur debt because of cancer, whereas <10% of patients in the United States reported having incurred debt. CONCLUSIONS: The survey provides information regarding the burden of cancer in China that to the authors' knowledge currently is unavailable from other sources, including medical care use, financial impacts, employment patterns, and life experience after a cancer diagnosis for survivors and their families.
BACKGROUND: China accounts for approximately 27% of global cancer deaths. However, to the authors' knowledge, the lasting effects of cancer and cancer treatments on patients have not been investigated in China. The authors developed a questionnaire, the China Survey of Experiences with Cancer, for Chinese cancer survivors. This article introduces the study design and domains covered in the questionnaire. METHODS: The Cancer Survivorship Supplement of the Medical Expenditure Panel Survey (MEPS) was used as a reference to develop the questionnaire. The final in-person surveys were conducted in 2015 and 2016. Samples were chosen through multistage sampling. The authors described the characteristics of the study participants and their cancer experiences. RESULTS: At the time of last follow-up, a total of 1166 patients had completed at least 1 component of the survey. Approximately 59% of the cancer survivors were aged ≥60 years. Greater than one-half of the participants had an elementary education level or less (51%) and a yearly family income of <$3174. Chinese cancer survivors were more likely to retire earlier than planned compared with American cancer survivors (37% vs 9%). The majority of Chinese cancer survivors (84%) reported that their work abilities were hindered by their cancer or cancer treatments. Approximately one-half of patients in China had to incur debt because of cancer, whereas <10% of patients in the United States reported having incurred debt. CONCLUSIONS: The survey provides information regarding the burden of cancer in China that to the authors' knowledge currently is unavailable from other sources, including medical care use, financial impacts, employment patterns, and life experience after a cancer diagnosis for survivors and their families.
Authors: Siqi Liu; Mingzhu Su; Nengliang Yao; Nan Zhang; Jialin Wang; Roger T Anderson; Xiaojie Sun Journal: BMC Public Health Date: 2020-11-25 Impact factor: 3.295
Authors: Mingzhu Su; Nan Zhang; Yuanchu Cai; Jialin Wang; Roger Anderson; Nengliang Yao; Xiaojie Sun Journal: Cancer Med Date: 2019-10-25 Impact factor: 4.452