Literature DB >> 31063267

Willingness of individuals with eating disorders to participate in health research.

Sara Nutley1, Deepthi Varma1, Xinguang Chen1, Catherine W Striley1.   

Abstract

BACKGROUND/AIMS: This study examines the association between eating disorders (EDs) and willingness to participate in health research studies among community members. MATERIALS &
METHOD: Data were collected from Health Street, a University of Florida community engagement initiative which aims to reduce disparities in healthcare and health research by direct engagement of community members.
RESULTS: Among 8,226 community members, 3.9% (n = 324) reported a lifetime ED. For all six types of health research studies queried, individuals with a lifetime ED reported a higher willingness to participate in health research compared to individuals without a history. After adjusting for selected covariates, individuals with ED were significantly more likely than individuals without ED to say they would be willing to volunteer for research studies that: ask questions about health (OR: 7.601, 95% CI: [1.874, 30.839]); require an overnight stay in a hospital (OR: 2.041, 95% CI: [1.442, 2.889]); and provide no remuneration (OR: 1.415, 95% CI: [1.022, 1.958]). Furthermore, when compared to individuals with anxiety or depression, individuals with ED reported increased interest in research participation and increased willingness to participate in most types of research studies assessed. After stratifying by gender and race, we observed few differences in willingness to participate in research among individuals with ED. DISCUSSION: These findings contribute to our current understanding of participant recruitment and enrollment in ED health research. Underrepresented populations who often do not seek treatment for EDs endorsed a high willingness to participate.
CONCLUSION: Future studies will likely benefit from including community members in ED research.
© 2019 Wiley Periodicals, Inc.

Entities:  

Keywords:  community-based participatory research; epidemiology; feeding and eating disorders; mental disorders; sampling bias; treatment seeking

Mesh:

Year:  2019        PMID: 31063267      PMCID: PMC8136836          DOI: 10.1002/eat.23090

Source DB:  PubMed          Journal:  Int J Eat Disord        ISSN: 0276-3478            Impact factor:   4.861


  21 in total

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Authors:  Sandra Mansour; Kenneth R Bruce; Howard Steiger; David C Zuroff; Sarah Horowitz; Annelie S Anestin; Lindsay Sycz
Journal:  Eur Eat Disord Rev       Date:  2012-02-07

Review 2.  The enigma of male eating disorders: A critical review and synthesis.

Authors:  Stuart B Murray; Jason M Nagata; Scott Griffiths; Jerel P Calzo; Tiffany A Brown; Deborah Mitchison; Aaron J Blashill; Jonathan M Mond
Journal:  Clin Psychol Rev       Date:  2017-08-02

Review 3.  Unmet need for treatment in the eating disorders: a systematic review of eating disorder specific treatment seeking among community cases.

Authors:  Laura M Hart; M Teresa Granillo; Anthony F Jorm; Susan J Paxton
Journal:  Clin Psychol Rev       Date:  2011-03-23

4.  Marijuana Use and Its Association with Participation, Navigation, and Enrollment in Health Research among African Americans.

Authors:  Fern J Webb; Catherine W Striley; Linda B Cottler
Journal:  J Ethn Subst Abuse       Date:  2015-07-25       Impact factor: 1.507

5.  Community needs, concerns, and perceptions about health research: findings from the clinical and translational science award sentinel network.

Authors:  Linda B Cottler; Donna Jo McCloskey; Sergio Aguilar-Gaxiola; Nancy M Bennett; Hal Strelnick; Molly Dwyer-White; Deborah E Collyar; Shaun Ajinkya; Sarena D Seifer; Catina Callahan O'Leary; Catherine W Striley; Bradley Evanoff
Journal:  Am J Public Health       Date:  2013-02-14       Impact factor: 9.308

Review 6.  Barriers to participation in mental health research: are there specific gender, ethnicity and age related barriers?

Authors:  Anna Woodall; Craig Morgan; Claire Sloan; Louise Howard
Journal:  BMC Psychiatry       Date:  2010-12-02       Impact factor: 3.630

Review 7.  Epidemiology of eating disorders, eating disordered behaviour, and body image disturbance in males: a narrative review.

Authors:  Deborah Mitchison; Jonathan Mond
Journal:  J Eat Disord       Date:  2015-05-23

8.  Eating disorders in men: underdiagnosed, undertreated, and misunderstood.

Authors:  Eric Strother; Raymond Lemberg; Stevie Chariese Stanford; Dayton Turberville
Journal:  Eat Disord       Date:  2012       Impact factor: 3.222

9.  Resistance to treatment and change in anorexia nervosa [corrected]: a clinical overview.

Authors:  Giovanni Abbate-Daga; Federico Amianto; Nadia Delsedime; Carlotta De-Bacco; Secondo Fassino
Journal:  BMC Psychiatry       Date:  2013-11-07       Impact factor: 3.630

10.  The changing demographic profile of eating disorder behaviors in the community.

Authors:  Deborah Mitchison; Phillipa Hay; Shameran Slewa-Younan; Jonathan Mond
Journal:  BMC Public Health       Date:  2014-09-11       Impact factor: 3.295

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