Literature DB >> 31045416

Beyond methods to applied research: Realizing the vision of PROMIS®.

Ashley Wilder Smith1, Roxanne E Jensen1.   

Abstract

Patients' perspectives about their health are critical to improving health outcomes. Patient reported outcomes (PRO) are emerging as a standard way to capture patient perspectives in clinical research and care delivery. Conventionally, researchers used lengthy fixed instruments that were burdensome and had limited applicability across disease groups and the life course. To address these challenges, the National Institutes of Health invested in the development of an innovative, paradigm-shifting measurement system: The Patient-Reported Outcomes Measurement Information System® (PROMIS®). This article provides an overview of the vision, funding, development, and growth of PROMIS® over the last 15 years. We highlight current and future research needs given the expanding adoption of PROMIS® across a variety of health care contexts. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

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Year:  2019        PMID: 31045416     DOI: 10.1037/hea0000752

Source DB:  PubMed          Journal:  Health Psychol        ISSN: 0278-6133            Impact factor:   4.267


  2 in total

1.  Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument.

Authors:  Raj S Kasthuri; Shruti Chaturvedi; Sonia Thomas; Nathan Vandergrift; Carla Bann; Nicole Schaefer; Marianne S Clancy; Reed Pyeritz; Keith R McCrae
Journal:  Blood Adv       Date:  2022-07-26

2.  Using a patient-reported outcome to improve detection of cognitive impairment and dementia: The patient version of the Quick Dementia Rating System (QDRS).

Authors:  James E Galvin; Magdalena I Tolea; Stephanie Chrisphonte
Journal:  PLoS One       Date:  2020-10-15       Impact factor: 3.240

  2 in total

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