Literature DB >> 31039957

Research using electronic health records: Balancing confidentiality and public good.

Katharine A Wallis1, Kyle S Eggleton1, Susan M Dovey2, Sharon Leitch2, Wayne K Cunningham3, Martyn I Williamson2.   

Abstract

General practitioners are increasingly approached to participate in research and share de-identified patient information. Research using electronic health records has considerable potential for improving the quality and safety of patient care. Obtaining individual patient consent for the use of the information is usually not feasible. In this article we explore the ethical issues in using personal health information in research without patient consent including the threat to confidentially and the doctor-patient relationship, and we discuss how the risks can be minimised and managed drawing on our experience as general practitioners and researchers.

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Year:  2018        PMID: 31039957     DOI: 10.1071/HC18040

Source DB:  PubMed          Journal:  J Prim Health Care        ISSN: 1172-6156


  4 in total

1.  Medication-related harm in New Zealand general practice: a retrospective records review.

Authors:  Sharon Leitch; Susan M Dovey; Wayne K Cunningham; Alesha J Smith; Jiaxu Zeng; David M Reith; Katharine A Wallis; Kyle S Eggleton; Andrew W McMenamin; Martyn I Williamson; Steven Lillis
Journal:  Br J Gen Pract       Date:  2021-07-29       Impact factor: 6.302

2.  COVID-19: Putting the General Data Protection Regulation to the Test.

Authors:  Stuart McLennan; Leo Anthony Celi; Alena Buyx
Journal:  JMIR Public Health Surveill       Date:  2020-05-29

Review 3.  When is it impractical to ask informed consent? A systematic review.

Authors:  Sara Jm Laurijssen; Rieke van der Graaf; Wouter B van Dijk; Ewoud Schuit; Rolf Hh Groenwold; Diederick E Grobbee; Martine C de Vries
Journal:  Clin Trials       Date:  2022-07-01       Impact factor: 2.599

4.  Documented nursing practices of pain assessment and management when communicating about pain in dementia care.

Authors:  Yvette I-Pei Tsai; Graeme Browne; Kerry Jill Inder
Journal:  J Adv Nurs       Date:  2022-04-18       Impact factor: 3.057

  4 in total

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